Perspectives of women in science: data sharing in primary immunodeficiency

Jessica Willett-Pachul
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Abstract

Jessica Willett Pachul is a Clinical Nurse Specialist in the Division of Immunology & Allergy at the Hospital for Sick Children in Toronto, Canada. In this commentary, she discusses the implications that the collection and sharing of health data can have in the diagnosis and treatment of primary immunodeficiency (PID), as well as in research and development in the field.
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妇女在科学领域的观点:原发性免疫缺陷的数据共享
Jessica Willett Pachul是加拿大多伦多病童医院免疫与过敏科的临床护士专家。在这篇评论中,她讨论了健康数据的收集和共享对原发性免疫缺陷(PID)的诊断和治疗以及该领域的研究和开发可能产生的影响。
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12
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Abstracts of the Immunodeficiency Canada 10th PID Symposium, 19 October 2023, Ottawa Neurodevelopmental disorder and immunodeficiency Novel heterozygous mutation in NFKB2 in a patient with predominantly antibody deficiency Perspectives of women in science: data sharing in primary immunodeficiency Management of newborn screening for severe combined immunodeficiency at a quaternary referral centre – an updated algorithm
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