Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study

IF 1.9 4区医学 Q1 EDUCATION, SPECIAL Journal of Intellectual & Developmental Disability Pub Date : 2022-12-07 DOI:10.3109/13668250.2022.2147053

S. Nijs, M. Zijlmans, C. Schuengel, P. Embregts

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引用次数: 2

Abstract

ABSTRACT Background The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary. Method A three-round Delphi procedure with international experts was undertaken to operationalise self-determination for persons with profound intellectual and multiple disabilities. The quantitative output of Likert scales guided us in finding consensus or differences in the qualitative data. First round qualitative data were analysed thematically. Results The analysis revealed four topics: (1) statements regarding the characteristics of the person with profound intellectual and multiple disabilities, (2) statements regarding characteristics of the social environment, (3) statements regarding the concept of self-determination, and (4) statements regarding the definition and operationalisation of concepts. Conclusion Consensus was found on the assumption that persons with profound intellectual and multiple disabilities can live a self-determined life and on the importance of the interplay between persons with profound intellectual and multiple disabilities and the environment in order to experience self-determination.

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深度智力残疾和多重残疾者自决权的实施：德尔菲研究

摘要背景智力和多重残疾人士的高度支持需求阻碍了他们实现自决的可能性。有必要支持他们对这对这个群体意味着什么的自决理解。方法采用国际专家参与的三轮德尔菲程序，为重度智力残疾和多重残疾患者实施自决。Likert量表的定量输出指导我们在定性数据中找到一致或差异。对第一轮定性数据进行了专题分析。结果分析揭示了四个主题：（1）关于严重智力和多重残疾者特征的陈述，（2）关于社会环境特征的陈述；（3）关于自决概念的陈述；以及（4）关于概念的定义和操作的陈述。结论在以下假设基础上达成了共识：患有严重智力残疾和多重残疾的人可以过自主的生活，以及患有严重智力障碍和多重残疾者与环境之间相互作用的重要性，以便体验自决。

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来源期刊

Journal of Intellectual & Developmental Disability Multiple-

CiteScore

3.40

自引率

7.70%

发文量

期刊介绍： Journal of Intellectual & Developmental Disability (formerly the Australia and New Zealand Journal of Developmental Disabilities) is the official journal of the Australasian Society for the Study of Intellectual Disability (ASSID). JIDD is an international, multidisciplinary journal in the field of intellectual and developmental disability. The journal publishes original qualitative and quantitative research papers, literature reviews, conceptual articles, brief reports, case reports, data briefs, and opinions and perspectives.