Predictors of Quality of Life Among Omani Family Caregivers of Patients With Traumatic Brain Injury.

Q3 Medicine Sultan Qaboos University Medical Journal Pub Date : 2023-11-01 Epub Date: 2023-11-30 DOI:10.18295/squmj.5.2023.028
Devakirubai Jacob, Joshua K Muliira, Eilean R Lazarus, Hema Roslin
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Abstract

Objectives: This study aimed to explore the quality of life (QoL) of Omani family caregivers (FCs) of patients with traumatic brain injury (TBI). After acute care, the burden of caring for patients with TBI is mainly shouldered by FCs.

Methods: This cross-sectional study was conducted at Khoula Hospital, Muscat, Oman. Patient data were collected at the time of discharge and 8 weeks post-discharge between April 2019 and December 2021. The SF-12 General Health Survey and Preparedness for Caregiving scale were used to measure the caregivers' QoL and preparedness, respectively. The Disability Rating and TBI Symptom scales were used to measure the patients' disability and symptoms, respectively.

Results: A total of 36 FCs and patients with TBI were recruited. Most caregivers were the parent (41.7%) or child (27.8%) of the patient with TBI. Overall, the caregivers had good physical QoL (PQoL) and mental health QoL (MHQoL) but low caregiving preparedness at the time of discharge. At 8 weeks post-discharge, there were significant improvements in caregiving preparedness (P <0.01) and patient disability (P <0.05) but a depreciation in caregivers' MHQoL (P <0.05), with no change in their PQoL. The caregiver's employment status and the severity of the patient's sleep and mood problems were modifiable predictors of the caregivers' PQoL. Caregiver's preparedness, the patient's inability to live independently, and the severity of the patient's mood and behavioural problems were predictors of caregivers' MHQoL.

Conclusion: Caring for patients with TBI negatively impacts the QoL of Omani FCs; this correlates with the physical, emotional, and mental health symptoms of the patient.

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阿曼家庭护理人员对创伤性脑损伤患者生活质量的预测因素
目的:创伤性脑损伤(TBI)患者急性期护理后的护理负担主要由家庭护理人员承担。我们的目的是探讨阿曼FCs治疗TBI患者的生活质量(QoL)。方法:从一家医院招募36名FCs和TBI患者。数据于2019年4月至2021年12月期间在出院时和出院后8周收集。采用SF-12一般健康问卷和照护准备量表分别衡量照护者的生活质量和准备程度。残障评定量表和创伤性脑损伤症状量表分别用于测量患者的残障和症状。进行配对t检验和多元线性回归分析。结果:照顾者以TBI患者的父母(41.7%)或子女(27.8%)居多。总体而言,护理人员的身体生活质量(PQoL)和心理健康生活质量(MHQoL)较好,但出院时护理准备程度较低。出院后8周,护理准备(p< 0.01)、患者残疾(p< 0.05)和护理人员MHQoL的下降(p< 0.05)均有显著改善,但PQoL无变化。可修改的PQoL预测因子是护理者的就业状况和患者睡眠和情绪问题的严重程度。MHQoL的预测因子为护理准备、患者无法独立生活、情绪和行为问题的严重程度。结论:阿曼FCs对TBI患者的生活质量有负面影响,这与患者的身体、情绪和精神健康症状相关。关键词:护理,家庭,生活质量,护理负担,创伤性脑损伤,护理者准备,阿曼
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来源期刊
CiteScore
2.00
自引率
0.00%
发文量
86
审稿时长
7 weeks
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