Irish mothers' experiences of providing support in decision-making to adults with intellectual disabilities: A qualitative study

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL British Journal of Learning Disabilities Pub Date : 2023-08-16 DOI:10.1111/bld.12553

Hannah Casey, Deirdre Desmond, Laura Coffey

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Abstract

Background

Supported decision-making may increase self-determination among adults with intellectual disabilities by encouraging and empowering them to make decisions about their lives to the greatest extent possible. The aim of this study was to explore the perceptions and experiences of mothers of adults with intellectual disabilities in Ireland of providing support in decision-making.

Methods

Semi-structured interviews were conducted with seven mothers who had an adult son or daughter with an intellectual disability; transcripts were thematically analysed.

Findings

Three main themes were identified: support (family, services and routine), decision-making (importance, ability and Capacity Act) and challenges (conflict, time, complex and enduring support needs and vulnerability).

Conclusions

The findings indicate that although mothers were supportive of the rights of their adult children with intellectual disabilities to make their own decisions, they were often hesitant to fully relinquish control in an effort to protect and guide them.

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爱尔兰母亲为智障成人提供决策支持的经验:一项定性研究

支持性决策可以通过鼓励和授权智障成年人最大限度地对自己的生活做出决定，从而提高他们的自决能力。本研究的目的是探索爱尔兰成年智障母亲在决策支持方面的看法和经验。对七位有成年智障儿子或女儿的母亲进行了半结构化访谈；对成绩单进行专题分析。确定了三个主要主题：支持（家庭、服务和日常生活）、决策（重要性、能力和能力法案）和挑战（冲突、时间、复杂和持久的支持需求和脆弱性）。研究结果表明，尽管母亲支持智力残疾成年子女自主决策的权利，为了保护和引导他们，他们经常犹豫是否要完全放弃控制权。

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来源期刊

British Journal of Learning Disabilities EDUCATION, SPECIAL-

CiteScore

2.30

自引率

20.00%

发文量

期刊介绍： The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.