Human dignity and researcher conduct in emergency care research with incapacitated adults

IF 0.5 Q4 MEDICAL ETHICS South African Journal of Bioethics and Law Pub Date : 2023-09-01 DOI:10.7196/sajbl.2023.v16.2.378
PhD Emergency Med C Stein
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Abstract

Emergency care research sometimes involves incapacitated adults as research participants. The ethical principle of respect for autonomy may not necessarily apply to an incapacitated person unable to act in an autonomous manner, although it can be argued that researchers still have a duty of respect towards such people because they have moral status despite being incapacitated. Sharing some common ground with theories of moral status based on ‘humanness’ and the ability for rational thought is the notion of human dignity, which features in arguments regarding researcher conduct with incapacitated patients. However, human dignity premised upon the unique ability of humans for rational thought and moral self-regulation is contingent upon these capabilities – a limitation that possibly makes dignity a less useful framework for research conduct in emergency care research. In this article, I will discuss the different conceptions of human dignity – as equality, status and virtue – and then draw on more recent literature that explains human dignity as a social constraint and as a factor influencing the conduct of healthcare professionals and researchers. I will address questions of whether dignity as a principle ought to apply only to those who have the ability to think rationally, or to all humans regardless of their condition or mental status. I will argue that, in relation to offering protection to research participants in emergency conditions, it is immaterial which view is taken.
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人的尊严和研究人员的行为在紧急护理研究与丧失行为能力的成年人
紧急护理研究有时涉及无行为能力的成年人作为研究参与者。尊重自主的伦理原则可能不一定适用于不能自主行事的无行为能力的人,尽管可以认为研究人员仍然有义务尊重这些人,因为他们尽管无行为能力,但仍有道德地位。与基于“人性”和理性思考能力的道德地位理论有一些共同点的是人类尊严的概念,这一概念在关于研究人员对无行为能力病人的行为的争论中占有重要地位。然而,人类尊严的前提是人类理性思考和道德自律的独特能力,这取决于这些能力——这一限制可能使尊严成为急诊护理研究中研究行为的一个不太有用的框架。在这篇文章中,我将讨论人类尊严的不同概念——平等、地位和美德——然后借鉴最近的文献,这些文献将人类尊严解释为一种社会约束,是影响医疗保健专业人员和研究人员行为的一个因素。我将讨论尊严作为一项原则是否应该只适用于那些有能力理性思考的人,还是适用于所有人,无论他们的状况或精神状态如何。我认为,在向紧急情况下的研究参与者提供保护方面,采取哪种观点并不重要。
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来源期刊
CiteScore
1.10
自引率
11.10%
发文量
18
审稿时长
14 weeks
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