Perceived stress moderates the relationship between family support and family quality of life among parents of children living with intellectual and developmental disabilities

IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2022-05-27 DOI:10.1111/jppi.12425
Chidozie E. Nwafor, Mirian Ofonedu, Nelson I. Nwankwo, Adaoga Obuna, Paschal Chukwuma Ugwu
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Abstract

In Nigeria, the prevalence of intellectual and/or developmental disabilities (IDD) is relatively high, and there is no harmonized national policy to subsidize care and to assist families in caring for their children living with IDD. Thus, the increased stress seems to affect psychological and physiological health and puts social and economic pressures on families managing the care needs of their children living with IDD. A high level of family support has been shown to positively affect the family quality of life (FQOL) of individuals with IDD and their family members. Perceived stress may affect the quality of life of parents of children with IDD. What is not clear is how perceived stress can moderate the relationship between family support and FQOL. The present study examined whether perceived stress moderates the relationship between family support and quality of life (FQOL) among 129 parents of children living with IDD. These participants were selected from a daycare school located in Enugu state, Nigeria. They consisted of 95 women and 34 men who were within the age range of 30–55 years, with a M age of 40.16 years and a SD of 9.11. Three sets of instruments were employed for data collection. The results of moderated regression analysis revealed that family support positively predicted FQOL. Perceived stress negatively predicted FQOL. Similarly, perceived stress moderated the relationship between family support and FQOL. Our findings highlight the importance interventions that target stress as a risk factor that may lead to low FQOL and family support as a protective factor that decreases the negative effect of perceived stress on FQOL. Creating interventions and policies that support adequate family support for parents caring for children with IDD may promote their FQOL.

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认知压力调节了智力和发育障碍儿童父母的家庭支持与家庭生活质量之间的关系
在尼日利亚,智力和/或发育障碍(IDD)的发病率相对较高,而且没有统一的国家政策来补贴照顾和协助家庭照顾患有IDD的儿童。因此,压力的增加似乎影响到心理和生理健康,并给照料患有缺碘症儿童的家庭带来社会和经济压力。高水平的家庭支持已被证明对缺碘症患者及其家庭成员的家庭生活质量(FQOL)有积极影响。感知压力可能会影响IDD患儿父母的生活质量。目前尚不清楚感知压力如何调节家庭支持与家庭生活质量之间的关系。本研究调查了129名IDD患儿父母的感知压力是否调节了家庭支持与生活质量(FQOL)之间的关系。这些参与者是从尼日利亚埃努古州的一所日托学校中挑选出来的。其中女性95例,男性34例,年龄在30 ~ 55岁之间,M年龄40.16岁,SD为9.11。数据收集使用了三套仪器。调节回归分析结果显示,家庭支持对家庭生活质量有正向预测作用。感知压力负向预测FQOL。同样,感知压力调节了家庭支持与家庭生活质量之间的关系。我们的研究结果强调了将压力作为可能导致低家庭生活质量的风险因素和家庭支持作为减少感知压力对家庭生活质量的负面影响的保护因素的重要性。制定干预措施和政策,为照顾缺乏症儿童的父母提供足够的家庭支持,可能会提高他们的生活质量。
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CiteScore
4.10
自引率
5.90%
发文量
38
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