RuSIDA: the online resource for the collection, storage and analysis of epidemiologicel, demographic and clinical laboratory data of patients

Q4 Medicine HIV Infection and Immunosuppressive Disorders Pub Date : 2023-01-24 DOI:10.22328/2077-9828-2022-14-4-49-58

A. Kuznetsova, V. G. Bobkov, A. Lebedev, A. Tumanov, K. V. Kim, N. E. Chaikovskaia, A. G. Chudnovsky, A. N. Charushin, A. Pronin, Е. V. Drobyshevskaya, A. V. Shemshura, A. V. Turkin, Е. A. Ilyina, V. V. Shevchenko, T. V. Krylova, I. L. Kirillova, E. N. Begma, T. Bogatyreva, K. Prodanova, L. F. Sklyar, Е. V. Kazennova, M. Bobkova

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Abstract

Objective on creating a universal tool with Russian user interface (UI) to systematically collect and store epidemiological-demographic and clinical-laboratory data of patients with the possibility of their structured export for subsequent multifaceted analysis.Materials and methods. When creating an online tool, the solutions of European colleagues used to conduct a multicenter study of EuroSIDA, including a list, algorithms for collecting, storing and exchanging data, were used as a model.Research and discussion. A Russian UI online resource RuSIDA has been developed, hosted on the website http://hivgen.org/, designed to fulfill the tasks above. The tool requires authorized access and has been successfully tested on data collection from HIV-infected patients at several AIDS centers in the Russian Federation.Conclusion. The developed online resource RuSIDA can be used to maintain medical electronic records, intralaboratory databases, as well as to conduct epidemiological monitoring of various nosologies and multicenter scientific studies.

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RuSIDA：用于收集、存储和分析患者的流行病学、人口统计学和临床实验室数据的在线资源

目的创建一个具有俄罗斯用户界面（UI）的通用工具，系统地收集和存储患者的流行病学人口统计和临床实验室数据，并有可能对其进行结构化输出，以便随后进行多方面分析。材料和方法。在创建在线工具时，欧洲同事用于对EuroSIDA进行多中心研究的解决方案，包括一个列表，用于收集、存储和交换数据的算法，被用作模型。研究和讨论。俄罗斯用户界面在线资源RuSIDA已经开发完成，托管在网站上http://hivgen.org/，旨在完成上述任务。该工具需要授权访问，并已在俄罗斯联邦多个艾滋病中心成功测试了艾滋病毒感染患者的数据收集。结论。开发的在线资源RuSIDA可用于维护医疗电子记录、实验室内数据库，以及对各种疾病学和多中心科学研究进行流行病学监测。

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来源期刊

HIV Infection and Immunosuppressive Disorders Medicine-Infectious Diseases

CiteScore

0.70

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0.00%

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期刊介绍： In the scientific-practical journal "HIV Infection and Immunosuppressive Disorders", published various issues of HIV medicine (epidemiology, molecular mechanisms of pathogenesis to the development of educational programs) leading scientists of Russia and countries of CIS, USA, as well as practical healthcare professionals working in research centers, research institutes, universities, clinics where done basic medical work. A special place on the pages of the publication is given to basic and clinical research, analytical reviews of contemporary and foreign reports, the provision of medical care for various diseases.