{"title":"Families who have a child with a disability: a literature review of quality of life issues from a Chinese perspective","authors":"Guo Ling, Petra Potměšilová, Miloň Potměšil","doi":"10.1080/10522158.2023.2165586","DOIUrl":null,"url":null,"abstract":"ABSTRACT The family is described as a complex system of relationships and functions of individual members. If a child with a disability is present in the family, this is an important characteristic of the family that affects the functioning of the family system. At an early age, children with disabilities are dependent on a certain level of family support that is proportional to the type and extent of their disability. The level of support subsequently affects the quality of life of the family. The literature study aimed to characterize and analyze available research on the quality of life in families with a disabled child in China. The search for relevant resources for this study was carried out in China’s National Knowledge Infrastructure (CNKI), Wanfang Data, and VIP databases. The search strategy was based on the following construct: (a) the quality of life of the family; (b) AND parent OR carer OR mother OR father; (c) AND disab * OR disability OR special needs; (d) AND AB = children OR child OR student OR infant. This review consolidates the empirical research to date on families’ quality of life and outlines areas of research for further exploration.","PeriodicalId":0,"journal":{"name":"","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2022-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1080/10522158.2023.2165586","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
ABSTRACT The family is described as a complex system of relationships and functions of individual members. If a child with a disability is present in the family, this is an important characteristic of the family that affects the functioning of the family system. At an early age, children with disabilities are dependent on a certain level of family support that is proportional to the type and extent of their disability. The level of support subsequently affects the quality of life of the family. The literature study aimed to characterize and analyze available research on the quality of life in families with a disabled child in China. The search for relevant resources for this study was carried out in China’s National Knowledge Infrastructure (CNKI), Wanfang Data, and VIP databases. The search strategy was based on the following construct: (a) the quality of life of the family; (b) AND parent OR carer OR mother OR father; (c) AND disab * OR disability OR special needs; (d) AND AB = children OR child OR student OR infant. This review consolidates the empirical research to date on families’ quality of life and outlines areas of research for further exploration.
摘要家庭被描述为一个由个体成员的关系和功能组成的复杂系统。如果家庭中有残疾儿童,这是影响家庭系统运作的家庭的一个重要特征。残疾儿童在很小的时候就依赖于一定程度的家庭支持,这与他们的残疾类型和程度成正比。支助水平随后影响到家庭的生活质量。这项文献研究旨在描述和分析关于中国残疾儿童家庭生活质量的现有研究。本研究的相关资源在中国国家知识基础设施(CNKI)、万方数据和VIP数据库中进行了搜索。搜索策略基于以下结构:(a)家庭的生活质量;(b) 以及父母、看护人、母亲或父亲;(c) 和残疾*或残疾或特殊需要;(d) AND AB=儿童或儿童或学生或婴儿。这篇综述整合了迄今为止关于家庭生活质量的实证研究,并概述了有待进一步探索的研究领域。