Role of Interacting and Learning Experiences on Public Stigma Against Dementia: An Observational Cross-Sectional Study.

Dementia (London, England) Pub Date : 2023-11-01 Epub Date: 2023-10-19 DOI:10.1177/14713012231207222
Taiji Noguchi, Takeshi Nakagawa, Ayane Komatsu, Erhua Shang, Chiyoe Murata, Tami Saito
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Abstract

Background: Overcoming dementia stigma is a global challenge. Contact and education on dementia may be promising approaches for reducing public stigma; however, the current evidence is insufficient. This study examined the moderating factors associated with the public stigma against dementia, focusing on experiences of interacting with and learning about people with dementia. Methods: This cross-sectional study recruited 710 adults aged 20-69 years who were not involved in any medical or care work. Participants were recruited via a web-based questionnaire survey for a large internet survey agency's panel in Japan. In terms of the public stigma about dementia, four domains were assessed using a multidimensional assessment scale: personal avoidance, fear of labelling, person-centredness, and fear of discrimination. We compared the stigma scores according to the participants' experiences of interacting with people with dementia ('none', 'talking or activities together', or 'living together') and learning about dementia ('yes' or 'no'), adjusted for demographic and socioeconomic factors.Results: Compared with those without interaction experiences, those with experiences of talking or activities with people with dementia had lower personal avoidance (p = .001), fear of labelling (p = .026), and fear of discrimination (p = .031); those with experiences of living together with people with dementia had lower personal avoidance (p = .014) and fear of discrimination (p = .031). Compared with those without learning experiences related to dementia, those with such experiences had lower personal avoidance (p < .001) and higher person-centredness (p = .048).Conclusions: The findings suggest that the promotion of interaction with and learning about people with dementia may be important for addressing the public stigma.

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互动和学习经验在公众对痴呆症的污名中的作用:一项观察性横断面研究。
背景:克服痴呆症的污名化是一项全球性挑战。关于痴呆症的接触和教育可能是减少公众耻辱感的有希望的方法;然而,目前的证据并不充分。这项研究考察了与公众对痴呆症的污名相关的调节因素,重点关注与痴呆症患者互动和了解痴呆症患者的经历。方法:这项横断面研究招募了710名年龄在20-69岁之间的成年人,他们没有参与任何医疗或护理工作。参与者是通过日本一家大型互联网调查机构小组的网络问卷调查招募的。关于公众对痴呆症的污名,使用多维评估量表对四个领域进行了评估:个人回避、对标签的恐惧、以人为中心和对歧视的恐惧。我们根据参与者与痴呆症患者互动(“没有”、“一起交谈或活动”或“一起生活”)和了解痴呆症(“是”或“否”)的经历比较了污名评分,并根据人口和社会经济因素进行了调整。结果:与没有互动经历的人相比,有与痴呆症患者交谈或活动经历的人的个人回避(p=0.001)、对标签的恐惧(p=0.026)和对歧视的恐惧(p=0.031)较低;有与痴呆症患者共同生活经历的人的个人回避(p=0.014)和对歧视的恐惧(p=0.031)较低。与没有痴呆症相关学习经历的人相比,有这种经历的人个人回避程度较低(p<0.001),以人为中心的程度较高(p=.048)。结论:研究结果表明,促进与痴呆症患者的互动和了解痴呆症患者可能对解决公众耻辱感很重要。
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