Universal Newborn Hearing Screening Program: 10-Year Outcome and Follow-Up from a Screening Center in Germany.

IF 4 Q1 GENETICS & HEREDITY International Journal of Neonatal Screening Pub Date : 2023-10-23 DOI:10.3390/ijns9040061
Kruthika Thangavelu, Kyriakos Martakis, Silke Feldmann, Bernhard Roth, Peter Herkenrath, Ruth Lang-Roth
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Abstract

Regular reporting of quality control is important in newborn hearing screening, ensuring early diagnosis and intervention. This study reports on a population-based newborn hearing screening program in North-Rhine, Germany and a hospital-based screening at a University Hospital for 2007-2016. The two-staged 'screening' and 'follow-up' program involving TEOAE and AABR recruited newborns through participating birth facilities. Results were sent to the regional tracking center, and the data were analyzed based on recommended benchmarks. The percentage of newborns from the participating birth facilities in the region increased from 1.4% in 2007 to 57.5% in 2016. The 10-year coverage rate for these newborns was 98.7%, the referral rate after a failed two-step screening was 3.4%, and the lost-to-follow-up rate was 1%. At the hospital, >95% of the screened newborns completed screening within 30 days, the 10-year referral rate was 5%, and 64% were referred within 3 months of age. The median time for screening completion was 6 days after birth, for referral it was 74 days after birth, and for diagnosis it was 55 days after birth. Regional-centralized tracking centers with uniform structure are necessary for proper quality control. Obligatory participation of birthing facilities and quality reports may improve performance, but the recommended quality criteria need considerable financial and infrastructural expenditure.

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通用新生儿听力筛查计划:德国筛查中心的10年结果和随访。
定期报告质量控制在新生儿听力筛查中非常重要,确保早期诊断和干预。本研究报告了2007-2016年德国北莱茵州一项基于人群的新生儿听力筛查计划和一所大学医院的一项基于医院的筛查。TEOAE和AABR参与的两阶段“筛查”和“随访”计划通过参与的分娩机构招募新生儿。结果被发送到区域跟踪中心,并根据推荐的基准对数据进行分析。该地区参与分娩机构的新生儿比例从2007年的1.4%上升到2016年的57.5%。这些新生儿的10年覆盖率为98.7%,两步筛查失败后的转诊率为3.4%,失访率为1%。在医院,95%以上的筛查新生儿在30天内完成筛查,10年转诊率为5%,64%在3个月大内转诊。筛查完成的中位时间为出生后6天,转诊为出生后74天,诊断为出生后55天。具有统一结构的区域集中跟踪中心对于适当的质量控制是必要的。分娩设施和质量报告的强制性参与可能会提高绩效,但建议的质量标准需要大量的财政和基础设施支出。
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来源期刊
International Journal of Neonatal Screening
International Journal of Neonatal Screening Medicine-Pediatrics, Perinatology and Child Health
CiteScore
6.70
自引率
20.00%
发文量
56
审稿时长
11 weeks
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