Irish parents' lived experience of learning about and adapting to their child's autistic spectrum disorder diagnosis and their process of telling their child about their diagnosis

Abstract

Little is known about the lived experience of Irish parents in learning about and adapting to their child's diagnosis of autistic spectrum disorder (ASD) and the process of disclosing this diagnosis to their child. Semi-structured interviews were completed with seven Irish parents of children with an ASD diagnosis to gain an in-depth understanding of these experiences. An interpretative phenomenological analysis (IPA) revealed key themes affecting the process of adjusting to the diagnosis and communicating this diagnosis to their child, including difficulties obtaining a diagnosis and parents ambivalent feelings upon receiving a diagnosis; challenges accessing appropriate support and resources, and attempting to maintain a ‘normal' family life; and finally a feeling of needing to protect their child, the realisation that non-disclosure is a poor strategy in the longer term, and adapting communication style to facilitate their child's understanding of their diagnosis. The importance of the sensitivity and ...