Moving from Disorder to Difference: A Systematic Review of Recent Language Use in Autism Research.

IF 9.5 Q1 PSYCHOLOGY, DEVELOPMENTAL Autism in Adulthood Pub Date : 2024-06-17 eCollection Date: 2024-06-01 DOI:10.1089/aut.2023.0030
Summer B Bottini, Hannah E Morton, Kelly A Buchanan, Kait Gould
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Abstract

Background: The neurodiversity paradigm positions autism as a neurological difference that is disabling in the societal context, shifting away from the traditional medical view of a disorder. Several recent publications recommend use of alternative neuro-affirming language (ANL) instead of traditional medical language (TML) with the aim to increase acceptance of autistic people and reduce prejudice. Examining language use within recent autism literature, including by journal and study characteristics, may offer insight into the influence of these recommendations and current disability discourse.

Methods: A systematic review was conducted using Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines in autism research from 2021 (n = 2322 articles; 394 journals). Articles were coded according to topic, participants, and use of self-report. Journals were coded by topic, geographic region, and language guidelines. Terminology use was extracted using QDA Miner software.

Results: Many articles primarily used TML with a smaller subset primarily using ANL. There was a positive correlation between ANL use and publication date. More ANL was associated with articles on topics of autistic traits, diversity, equity, and inclusion (DEI), or lifespan and that included autistic adults or autistic self-report. More ANL was also found in journals from Australasia or Europe or those that had identify-first language (IFL) guidelines. Less ANL (more TML) was associated with articles on biology/causes or treatment and that included autistic or non-autistic parents, autistic youth, siblings, or other clinical groups, and were published in medical journals.

Conclusion: TML continues to largely dominate language choices in autism research, with an emerging shift toward ANL in recent literature. Increased ANL may be facilitated by journal and article language recommendations. Neuro-affirming language was also more likely in articles on topics prioritized by the autistic community, that included autistic adults, and may also be driven by cultural differences. Researchers and practitioners should consider the potential for their language use to impact individual and societal views of autistic people.

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从障碍到差异:自闭症研究中最新语言使用的系统回顾。
背景:神经多样性范式将自闭症定位为一种在社会环境中致残的神经系统差异,改变了传统医学对自闭症的看法。最近的一些出版物建议使用替代性神经肯定语言(ANL)代替传统医学语言(TML),以提高人们对自闭症患者的接受度并减少偏见。研究近期自闭症文献中的语言使用情况,包括期刊和研究特点,可以帮助我们深入了解这些建议和当前残疾话语的影响:采用《系统综述和元分析首选报告项目》(PRISMA)指南对 2021 年以来的自闭症研究进行了系统综述(n = 2322 篇文章;394 种期刊)。文章根据主题、参与者和自我报告的使用情况进行编码。期刊按主题、地理区域和语言指南进行编码。使用 QDA Miner 软件提取术语使用情况:许多文章主要使用 TML,一小部分文章主要使用 ANL。ANL的使用与发表日期呈正相关。关于自闭症特征、多样性、公平与包容(DEI)或生命周期等主题的文章,以及包含自闭症成人或自闭症自我报告的文章,使用 ANL 的较多。来自澳大拉西亚或欧洲的期刊,或那些有识别第一语言(IFL)指南的期刊,也会发现更多的 ANL。在医学期刊上发表的有关生物学/病因或治疗的文章中,ANL较少(TML较多),且包含自闭症或非自闭症父母、自闭症青少年、兄弟姐妹或其他临床群体:在自闭症研究中,TML 仍在很大程度上主导着语言选择,而在最近的文献中,正逐渐转向 ANL。期刊和文章的语言建议可能会促进ANL的增加。在自闭症群体优先考虑的主题文章中,神经肯定语言也更有可能出现,其中包括自闭症成人,这也可能是文化差异造成的。研究人员和从业人员应考虑到他们的语言使用可能会影响个人和社会对自闭症患者的看法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
10.00
自引率
14.70%
发文量
47
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