H29 Practical tools and transfer aids in daily care for clients with advanced hd

Brigit Burer- van der Zeeuw, Ondine de Hullu, Sylvia Alders, Tamara Ouwersloot, Caroline Kuijt
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Abstract

Background Topaz Huntington Centre Overduin is a long term care facility that provides care to both ambulant (100) and long term care patients (70). In the last stages of disease many clients require assistance with transfers and care because of the physical limitations, in combination with involuntary movements, reduced cognitive abilities and behavioral disorders. Standard procedures for transfers or the use of equipment are not designed for these patients and are a potential threat to the health of patients and a tremendous physical strain for nurses. Aims To develop an advanced HD friendly transfer handbook and training guide. Methods/techniques First, a selection of the top 5 most strenuous transfers was selected by way of a survey in HD-experienced care staff. A study team consisting of physiotherapists, an occupation therapist and care staff used a predefined ‘trial and error’ protocol to compare traditional and experimental methods. Results After experimenting with new methods, a new handbook is developed with procedures and materials for advanced HD adjusted transfers and practical tools. Conclusions Standard procedures are not always efficient when providing care to clients with HD. Adaption of these procedures and tools and knowledge transfer is necessary in order to give employees the ability to care in a precise, proper way for clients with advanced HD.
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H29老年痴呆症患者日常护理的实用工具和转移辅助工具
Topaz Huntington Centre Overduin是一家长期护理机构,为100名流动病人和70名长期护理病人提供护理。在疾病的最后阶段,由于身体上的限制,加上不自主的运动、认知能力下降和行为障碍,许多病人需要转移和护理方面的帮助。转移或设备使用的标准程序不是为这些病人设计的,对病人的健康构成潜在威胁,并给护士带来巨大的身体压力。目的开发一个先进的HD友好的转会手册和培训指南。方法/技术首先,通过对hd经验丰富的护理人员进行调查,选择了前5名最费力的转移。一个由物理治疗师、职业治疗师和护理人员组成的研究小组使用预先定义的“试错”协议来比较传统方法和实验方法。结果经过新方法的试验,编写了一份新的手册,其中包括高级HD调整转移和实用工具的程序和材料。结论:标准程序在为HD患者提供护理时并不总是有效的。为了让员工能够以精确、适当的方式照顾患有高级HD的客户,对这些程序、工具和知识转移进行调整是必要的。
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WED 253 An atypical presentation of sneddon syndrome H29 Practical tools and transfer aids in daily care for clients with advanced hd F06 When and how does manifest hd begin? a comparison of age at onset of motor and non-motor symptoms F33 Task-switching abilities in pre-manifest huntington’s disease subjects F56 Psychiatric symptoms in huntington’s disease: relationship to disease stage in the CAPIT-HD2 beta-testing study
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