{"title":"Stigma as a dominant discourse in fetal alcohol spectrum disorder","authors":"Peter W. Choate, D. Badry","doi":"10.1108/ADD-05-2018-0005","DOIUrl":null,"url":null,"abstract":"PurposeThe purpose of this paper is to conduct a scoping review of the literature to explore the many ways stigma affects people with FASD and to highlight the disciplines and places where discourse on FASD and stigma is taking place.Design/methodology/approachSearches were conducted in PubMed, ERIC, Family & Society Studies Worldwide, Families Studies Abstracts and Google Scholar between 2008 and 2018. Search terms focused on stigma, shame and the connection to FASD with a view to looking across social and medical science literature.FindingsSearches identified 39 full text manuscripts, 13 of which were included in the scoping review. Stigma toward people with FASD exists in multiple professional forums across disciplines. The relationship between mother’s use of alcohol and the lasting impact on the child is a focus in the articles identified from a public health perspective. The review showed there was limited cross-disciplinary discussion evident. In total 13 articles were selected for inclusion in this review.Research limitations/implicationsNegative discourses predominate with little attention being paid to possible areas of success as well as cases of lower FASD impacts. There is a significant void in work focusing on positive outcomes for people with FASD. Such discourse would support a better understanding of pathways to more positive outcomes.Originality/valueThis paper highlights the issue of FASD and stigma through identification of relevant literature and expands the conversation to offer insights into the challenging terrain that individuals with FASD must navigate. The issue of stigma is not linked only to individuals with FASD but also their support systems. It is critical to recognize the multiple attributions of stigma to FASD in order to effectively take up conversations across and between disciplines to promote new discourses focused on de-stigmatization.","PeriodicalId":51922,"journal":{"name":"Advances in Dual Diagnosis","volume":"8 1","pages":""},"PeriodicalIF":0.8000,"publicationDate":"2019-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"22","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in Dual Diagnosis","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1108/ADD-05-2018-0005","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
引用次数: 22
Abstract
PurposeThe purpose of this paper is to conduct a scoping review of the literature to explore the many ways stigma affects people with FASD and to highlight the disciplines and places where discourse on FASD and stigma is taking place.Design/methodology/approachSearches were conducted in PubMed, ERIC, Family & Society Studies Worldwide, Families Studies Abstracts and Google Scholar between 2008 and 2018. Search terms focused on stigma, shame and the connection to FASD with a view to looking across social and medical science literature.FindingsSearches identified 39 full text manuscripts, 13 of which were included in the scoping review. Stigma toward people with FASD exists in multiple professional forums across disciplines. The relationship between mother’s use of alcohol and the lasting impact on the child is a focus in the articles identified from a public health perspective. The review showed there was limited cross-disciplinary discussion evident. In total 13 articles were selected for inclusion in this review.Research limitations/implicationsNegative discourses predominate with little attention being paid to possible areas of success as well as cases of lower FASD impacts. There is a significant void in work focusing on positive outcomes for people with FASD. Such discourse would support a better understanding of pathways to more positive outcomes.Originality/valueThis paper highlights the issue of FASD and stigma through identification of relevant literature and expands the conversation to offer insights into the challenging terrain that individuals with FASD must navigate. The issue of stigma is not linked only to individuals with FASD but also their support systems. It is critical to recognize the multiple attributions of stigma to FASD in order to effectively take up conversations across and between disciplines to promote new discourses focused on de-stigmatization.
目的本文的目的是对文献进行范围审查,以探索耻辱感影响FASD患者的多种方式,并强调FASD和耻辱感的学科和地方正在发生。在2008年至2018年期间,在PubMed, ERIC, Family & Society Studies Worldwide, Families Studies Abstracts和谷歌Scholar中进行了搜索。搜索词集中在耻辱、羞耻和与FASD的联系上,以查看整个社会和医学科学文献。搜索发现了39份全文手稿,其中13份被纳入了范围审查。对FASD患者的污名存在于多个专业论坛中。从公共卫生角度确定的文章的重点是母亲使用酒精与对儿童的持久影响之间的关系。该综述显示,明显存在有限的跨学科讨论。总共有13篇文章被纳入本综述。研究局限/影响负面话语占主导地位,很少关注可能的成功领域以及较低FASD影响的案例。在关注FASD患者的积极结果的工作中存在显著的空白。这种讨论将有助于更好地理解通往更积极结果的途径。原创性/价值本文通过对相关文献的识别,强调了FASD和耻辱的问题,并扩大了对话,以提供对FASD患者必须驾驭的具有挑战性的地形的见解。耻辱感问题不仅与FASD患者有关,还与他们的支持系统有关。为了有效地跨学科和跨学科进行对话,促进以去污名化为重点的新话语,认识到污名化对FASD的多重归因至关重要。