The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis.

Elizabeth M Miller, Joanne E Porter, Michael S Barbagallo
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Abstract

Objective: Disclosing the truth when breaking bad news continues to be difficult for health professionals, yet it is essential for patients when making informed decisions about their treatment and end-of-life care. This literature review aimed to explore and examine how health professionals, patients, and families experience truth disclosure during the delivery of bad news in the inpatient/outpatient palliative care setting.

Methods: A systemized search for peer-reviewed, published papers between 2013 and 2020 was undertaken in September 2020 using the CINAHL, Medline, and PsycInfo databases. The keywords and MeSH terms ("truth disclosure") AND ("palliative care or end-of-life care or terminal care or dying") were used. The search was repeated using ("bad news") AND ("palliative care or end-of-life care or terminal care or dying") terms. A meta-synthesis was undertaken to synthesize the findings from the eight papers.

Results: Eight papers were included in the meta-synthesis and were represented by five Western countries. Following the synthesis process, two concepts were identified: "Enablers in breaking bad news" and "Truth avoidance/disclosure." Several elements formed the concept of Enablers for breaking bad news, such as the therapeutic relationship, reading cues, acknowledgment, language/delivery, time/place, and qualities. A conceptual model was developed to illustrate the findings of the synthesis.

Significance of results: The conceptual model demonstrates a unique way to look at communication dynamics around truth disclosure and avoidance when breaking bad news. Informed decision-making requires an understanding of the whole truth, and therefore truth disclosure is an essential part of breaking bad news.

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在姑息治疗中突发坏消息时,卫生专业人员、患者和家属披露真相的经验:一项定性综合研究。
目的:揭露真相时,打破坏消息仍然是困难的卫生专业人员,但它是必要的,当病人作出明智的决定,他们的治疗和临终关怀。本文献综述旨在探讨和检查在住院/门诊姑息治疗环境中,卫生专业人员、患者和家属在传递坏消息时如何经历真相披露。方法:于2020年9月使用CINAHL、Medline和PsycInfo数据库对2013年至2020年间发表的同行评议论文进行系统检索。使用关键词和MeSH术语(“真相披露”)和(“姑息治疗或临终关怀或临终关怀”)。使用(“坏消息”)和(“姑息治疗或临终关怀或临终关怀或死亡”)术语重复搜索。对八篇论文的研究结果进行了综合分析。结果:8篇论文被纳入meta-synthesis,来自5个西方国家。在综合过程之后,确定了两个概念:“打破坏消息的推动者”和“真相回避/披露”。有几个因素构成了坏消息披露的“促成因素”的概念,比如治疗关系、阅读线索、承认、语言/表达、时间/地点和质量。开发了一个概念模型来说明综合研究的结果。结果的意义:概念模型展示了一种独特的方式来看待在打破坏消息时围绕真相披露和回避的沟通动态。知情决策需要了解全部真相,因此披露真相是打破坏消息的重要组成部分。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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