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Bedbound. 卧床不起的
Palliative and Supportive Care
Pub Date : 2023-04-01 DOI: 10.1017/S1478951522001213
Brian R Smith
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引用次数: 0
Examining public stigma and expectations of grief following medical aid and dying in the US: A vignette-based experiment. 在美国调查公众对医疗救助和死亡后的悲伤的耻辱和期望:一个基于小插曲的实验
Palliative and Supportive Care
Pub Date : 2023-04-01 DOI: 10.1017/S1478951522000852
Jonathan Singer, Lauren J Breen, Elizabeth T Loggers

Objectives: Families bereaved following Medical Aid in Dying (MAID)-related death express concerns about public stigma. As access to MAID expands, research examining MAID is needed, including understanding stigma toward family members. This study examines if stigmatization exists toward bereaved individuals whose family member utilized MAID at differing ages and assess if expectations of grief differ between bereaved individuals whose family member utilized MAID compared to bereaved individuals whose family member died of an illness.

Methods: This study utilized a randomized, between-groups, vignette-based experiment to test the effects of cause of death (MAID vs. illness-related death) and age (28, 38, 70, and 80 years) of the deceased on indicators of public stigma. Participants (N = 428) were recruited from mTURK (Mage = 42.54; SDage = 16.50).

Results: Analyses showed a statistically significant interaction between age and the mode of death (F(7, 400), p = 0.001, $eta _{rm p}^2$ = 0.06) and the main effect for age (F(5, 401), p = 0.004, $eta _{rm p}^2$ = 0.04) on expectations of grief, whereas emotional reactions and wanting social distance were not significant (p > 0.05). Participants expected more maladaptive grief among family members of 28- and 70-year-olds who died of illness compared to 28- or 38-year-olds who utilized MAID [28-year-old (M = 44.12, SD = 12.03) or 70-year-old (M = 44.32, SD = 10.29) illness-related death vs. 28-year-old (M = 39.3, SD = 11.56; p = 0.01) or 38-year-old (M = 38.71, SD = 11.56; p = 0.007) MAID-related death].

Significance of results: Findings suggest that direct stigma does not exist toward family members of individuals engaging in MAID. The American public may expect that family members of young individuals who utilize MAID are accepting of the death and expect them to experience fewer maladaptive grief symptoms. Future research should investigate differences in bereavement outcomes based on age of bereaved caregivers of individuals engaging in MAID.

死亡医疗援助(MAID)相关死亡的家属表达了对公众耻辱的担忧。随着MAID的普及，需要对MAID进行研究，包括了解对家庭成员的污名化。本研究探讨了不同年龄家庭成员使用MAID的丧亲个体是否存在污名化，并评估家庭成员使用MAID的丧亲个体与家庭成员死于疾病的丧亲个体对悲伤的预期是否存在差异。本研究采用随机、组间、基于小图像的实验来测试死亡原因(MAID vs.疾病相关死亡)和死者年龄(28岁、38岁、70岁和80岁)对公众污名指标的影响。参与者(N = 428)从mTURK招募(Mage = 42.54;SDage = 16.50)。分析显示，年龄与死亡方式之间的交互作用具有统计学意义(F(7,400)， p = 0.001， $eta _{rm p}^2$ = 0.06)，年龄对悲伤预期的主要影响(F(5,401)， p = 0.004， $eta _{rm p}^2$ = 0.04)，而情绪反应和想要社交距离不显著(p > 0.05)。与使用MAID的28岁或38岁的人相比，参与者预期28岁和70岁的死于疾病的家庭成员中有更多的适应不良悲伤[28岁(M = 44.12, SD = 12.03)或70岁(M = 44.32, SD = 10.29)疾病相关死亡与28岁(M = 39.3, SD = 11.56;p = 0.01)或38岁(M = 38.71, SD = 11.56;p = 0.007)。研究结果表明，对从事MAID的个人的家庭成员不存在直接的污名。美国公众可能期望使用MAID的年轻人的家庭成员接受死亡，并期望他们经历更少的不适应悲伤症状。未来的研究应根据从事MAID的个体的丧亲照顾者的年龄来调查丧亲结果的差异。
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引用次数: 0
Shores of acceptance 接受的海岸
Palliative and Supportive Care
Pub Date : 2022-12-01 DOI: 10.1017/S1478951522000888
Anjali Gupta
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引用次数: 0
Light of the setting sun 夕阳的余晖
Palliative and Supportive Care
Pub Date : 2022-11-15 DOI: 10.1017/s1478951522001274
Junyan Zhao, Liu Chen
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引用次数: 0
PAX volume 20 issue 6 Cover and Front matter PAX第20卷第6期封面和封面问题
Palliative and Supportive Care
Pub Date : 2022-11-01 DOI: 10.1017/s1478951522001250
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引用次数: 0
PAX volume 20 issue 5 Cover and Front matter PAX第20卷第5期封面和封面问题
Palliative and Supportive Care
Pub Date : 2022-09-16 DOI: 10.1017/s1478951522001225
ed and indexed in the following: CINAHL database; Cumulative Index to Nursing and Allied Health Liteature; MEDLINE Change of address: Allow six weeks for all changes to become effective. All communication should include both old and new addresses (with postal codes) and should be accompanied by a mailing label from a recent issue. Editorial Office: William Breitbart, Editor-in-Chief, Memorial Sloan Kettering Cancer Center, Department of Psychiatry and Behavioral Sciences, 641 Lexington Avenue, New York, NY 10022, USA. Telephone: (646) 888-0020. Fax: (212) 888-2356. E-mail: breitbaw@mskcc.org. Office of Publication: Cambridge University Press, One Liberty Plaza, New York, NY 10006, USA: Telephone: (212) 337-5000. Fax: (212) 337-5959. Printed in the United States of America on acid-free paper. Emeritus Lea Baider, Sharett Institute of Oncology, Israel Susan Block, Dana-Farber Cancer Institute, USA Irene Higginson, King’s College London, UK Paul Jacobsen, Ph.D., National Cancer Institute, USA Professor Uwe Koch, University Hospital at Hamburg-Eppendorf, Germany Neil MacDonald, McGill University, Canada Volume 20 October 2022 Number 5
编辑和索引如下:CINAHL数据库;护理及相关卫生文献累积索引;MEDLINE地址变更:所有变更生效的时间为六周。所有通信应包括新旧地址(邮政编码)，并应附有最近一期的邮寄标签。编辑部:William Breitbart，总编辑，纪念斯隆凯特琳癌症中心精神病学和行为科学部，纽约列克星敦大道641号，NY 10022，美国电话:(646)888-0020。传真:(212)888-2356。电子邮件:breitbaw@mskcc.org。出版办公室:剑桥大学出版社，美国纽约自由广场一号，NY 10006;电话:(212)337-5000。传真:(212)337-5959。在美国用无酸纸印刷的。美国达纳法伯癌症研究所Irene Higginson，英国伦敦国王学院Paul Jacobsen博士，美国国家癌症研究所Uwe Koch教授，德国汉堡-埃本多夫大学医院Neil MacDonald，加拿大麦吉尔大学，2022年10月20日第5期
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引用次数: 0
PAX volume 20 issue 4 Cover and Front matter PAX第20卷第4期封面和封面问题
Palliative and Supportive Care
Pub Date : 2022-07-25 DOI: 10.1017/s147895152200089x
Kristine, A., Donovan, Barbara, B., Lubrano DI Ciccone, Rachel, L., Bernstein, Christopher, W., Racine
ed and indexed in the following: CINAHL database; Cumulative Index to Nursing and Allied Health Liteature; MEDLINE Change of address: Allow six weeks for all changes to become effective. All communication should include both old and new addresses (with postal codes) and should be accompanied by a mailing label from a recent issue. Editorial Office: William Breitbart, Editor-in-Chief, Memorial Sloan Kettering Cancer Center, Department of Psychiatry and Behavioral Sciences, 641 Lexington Avenue, New York, NY 10022, USA. Telephone: (646) 888-0020. Fax: (212) 888-2356. E-mail: breitbaw@mskcc.org. Office of Publication: Cambridge University Press, One Liberty Plaza, New York, NY 10006, USA: Telephone: (212) 337-5000. Fax: (212) 337-5959. Printed in the United States of America on acid-free paper. Emeritus Lea Baider, Sharett Institute of Oncology, Israel Susan Block, Dana-Farber Cancer Institute, USA Irene Higginson, King’s College London, UK Paul Jacobsen, Ph.D., National Cancer Institute, USA Professor Uwe Koch, University Hospital at Hamburg-Eppendorf, Germany Neil MacDonald, McGill University, Canada Volume 20 August 2022 Number 4
编辑和索引如下:CINAHL数据库;护理及相关卫生文献累积索引;MEDLINE地址变更:所有变更生效的时间为六周。所有通信应包括新旧地址(邮政编码)，并应附有最近一期的邮寄标签。编辑部:William Breitbart，总编辑，纪念斯隆凯特琳癌症中心精神病学和行为科学部，纽约列克星敦大道641号，NY 10022，美国电话:(646)888-0020。传真:(212)888-2356。电子邮件:breitbaw@mskcc.org。出版办公室:剑桥大学出版社，美国纽约自由广场一号，NY 10006;电话:(212)337-5000。传真:(212)337-5959。在美国用无酸纸印刷的。美国达纳法伯癌症研究所Irene Higginson英国伦敦国王学院Paul Jacobsen博士美国国家癌症研究所Uwe Koch教授德国汉堡-埃本多夫大学医院Neil MacDonald加拿大麦吉尔大学第20卷2022年8月4号
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引用次数: 0
More New Old Me 更多新的老我
Palliative and Supportive Care
Pub Date : 2022-07-25 DOI: 10.1017/s1478951522000748
W. Breitbart
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引用次数: 0
What I Will Miss and What I Will Not Miss When I Am Near Death: A List Poem 当我临近死亡时，我会想念什么，我不会想念什么:一首清单诗
Palliative and Supportive Care
Pub Date : 2022-06-06 DOI: 10.1017/s1478951522000700
Paulina M. Rousseau
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引用次数: 0
Whispers from Fogo 福戈的耳语
Palliative and Supportive Care
Pub Date : 2022-06-06 DOI: 10.1017/s1478951522000712
I. Eche
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引用次数: 0
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