Patient Perspectives About Cancer Clinical Pathways and Care Coordination

D. Collyar
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Abstract

While health care leaders may ultimately want to create better care for patients, systemic goals can be at odds with individual patient needs. Before finalizing clinical pathways, patient needs must be intentionally assessed to en­sure pathways that work for providers can also deliver flexible and effective pa­tient care for the entire spectrum of patients and their families. Tools should en­compass the entire patient experience, from ways to avoid cancer, how to obtain a diagnosis and biomarker testing, and participation in clinical trials, to treatment decisions, survivorship plans, and end-of-life support. This article discusses how patients feel through their cancer experience and suggests ways to incorporate important components like social determinants of health; diversity, equity, and inclusion strategies; and cost considerations so patients can live full lives.
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患者对癌症临床途径和护理协调的看法
虽然医疗保健领导者最终可能希望为患者创造更好的护理,但系统目标可能与患者的个人需求不一致。在最终确定临床路径之前,必须有意识地评估患者的需求,以确保服务提供者的路径也可以为整个患者及其家属提供灵活有效的患者护理。工具应该涵盖整个患者体验,从避免癌症的方法,如何获得诊断和生物标志物测试,参与临床试验,到治疗决策,生存计划和临终支持。这篇文章讨论了患者在癌症经历中的感受,并提出了将健康的社会决定因素等重要因素纳入其中的方法;多元化、公平和包容战略;同时考虑到成本问题,这样病人就能过上完整的生活。
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