Exploring the experiences of birth mothers whose children have been diagnosed with fetal alcohol spectrum disorders: a qualitative study

IF 0.8 Q4 PSYCHOLOGY, CLINICAL Advances in Dual Diagnosis Pub Date : 2019-01-11 DOI:10.1108/ADD-10-2018-0014
Robyn Thomas, R. Mukherjee
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引用次数: 3

Abstract

Purpose Fetal alcohol spectrum disorder (FASD) is an umbrella term for a range of conditions that may occur in an individual whose mother drank alcohol during pregnancy. There has been little research into the experience of birth mothers of children with FASD and no published work of this kind in the UK. This is in contrast to a number of studies that have been conducted on foster/adoptive parents. In light of the recent publication in the UK of a mixed methods study on adoptive carers, it is timely to conduct research on birth mothers in the UK. The purpose of this paper is to explore the experiences of birth mothers following a diagnosis of FASD in their children. Design/methodology/approach An interpretive phenomenological analytical approach was used to generate themes from individual semi-structured interviews of five women who are birth mothers of children with FASD. Findings Four superordinate main themes and various subthemes were identified. To blame or not to blame captures the tension the mothers experience when considering the cause of their child’s condition. Life is a series of battles which describes the struggles the women experience on a crusade with a renewed sense of purpose that captures the process of transformation that occurs, which helps describe the internal and external factors that help the mothers cope. Originality/value FASD is often described in the literature as being completely preventable with the implication that it is the mother’s fault because they drank alcohol during pregnancy. However, a statement like this fails to portray the complexities of the phenomenon of women drinking during pregnancy. Life is difficult for the women for a number of different reasons, yet a sense of hope is present. The mothers have a renewed sense of purpose to do the best they can for their child and to raise awareness of FASD. Understanding their experiences can help service providers better meet the needs of parents and children affected by FASD.
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探索孩子被诊断为胎儿酒精谱系障碍的生母的经历:一项定性研究
目的胎儿酒精谱系障碍(FASD)是母亲在怀孕期间饮酒可能导致的一系列病症的总称。对患有FASD的孩子的生母的经历的研究很少,在英国也没有发表过这方面的研究。这与对寄养/收养父母进行的一些研究形成对比。鉴于英国最近发表了一项关于收养照顾者的混合方法研究,对英国的生母进行研究是及时的。本文的目的是探讨分娩母亲的经验后,诊断为FASD的孩子。设计/方法/方法:采用解释性现象学分析方法,从五名患有FASD儿童的生母的个人半结构化访谈中产生主题。发现确定了四个上级主题和各种副主题。责备或不责备抓住了母亲在考虑孩子病情的原因时所经历的紧张。生活是一系列的战斗,描述了女性在一场十字军东征中所经历的斗争,她们带着一种新的使命感,捕捉了发生的转变过程,这有助于描述帮助母亲应对的内部和外部因素。在文献中,自闭症谱系障碍通常被描述为完全可以预防的,暗示这是母亲的错,因为她们在怀孕期间饮酒。然而,这样的说法并没有描述女性在怀孕期间饮酒现象的复杂性。由于许多不同的原因,生活对女性来说很困难,但希望是存在的。母亲们有了新的目标感,要为孩子做最好的事情,并提高对FASD的认识。了解他们的经历,有助服务提供者更切合受伤残津贴影响的家长及儿童的需要。
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来源期刊
Advances in Dual Diagnosis
Advances in Dual Diagnosis PSYCHOLOGY, CLINICAL-
CiteScore
1.50
自引率
33.30%
发文量
15
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