Comparison of quality of life, anxiety, and satisfaction with rehabilitation services among mothers of children with autism spectrum disorders and those without autistic children in Ahvaz-Iran

P. Zamani, H. Khoramshahi, Nasrin Khosravi, Saeed Hesam
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Abstract

Background. Mothers with autistic children suffer a lot of psychological and physical pressures that can affect their quality of life, emotional states, and judgment about medical services. This study aimed to evaluate the quality of life, anxiety, and satisfaction with rehabilitation services for mothers of children with autism spectrum disorders and of non-autistic children in Ahvaz-Iran. Methods. In this cross-sectional descriptive-analytical study, 128 mothers with autistic children and 30 mothers with non-autistic children needing rehabilitation interventions were selected from Ahvaz rehabilitation centers. All participants were asked to complete Quality of Life (WHOQOL-BREIF) questionnaire, 14-item Perceived Stress Scale as well as Satisfaction Questionnaire. Data analysis was performed using a multivariate three-way ANOVA test. Results. It was found that mothers of autistic children had a significantly lower quality of life score than those without autistic children (P<0.001). However, the two groups had no significant difference in anxiety score (P=0.114) and satisfaction (P=0.079). Factors such as age, education, and occupation of mothers significantly affected the results (P<0.05). Moreover, mothers whose autistic children received rehabilitation services under one month had lower quality of life (P=0.003) and a higher level of anxiety (P=0.025) than those who received rehabilitation over six months. Conclusion. Middle-aged housewives with autistic children had the lowest mean quality of life score among all mothers studied. Mothers with a university education reported a lower level of satisfaction compared to mothers without a university education, indicating a higher level of expectations for their rehabilitation outcome. Practical Implications. Research findings can be applied in managing rehabilitation services for autistic children and their families.
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阿瓦兹-伊朗自闭症谱系障碍儿童母亲与非自闭症儿童母亲的生活质量、焦虑和对康复服务的满意度比较
背景。患有自闭症儿童的母亲承受着巨大的心理和生理压力,这些压力会影响她们的生活质量、情绪状态和对医疗服务的判断。本研究旨在评估阿瓦兹-伊朗自闭症谱系障碍儿童和非自闭症儿童的母亲的生活质量、焦虑和对康复服务的满意度。方法。本研究选取阿瓦士康复中心的128名自闭症儿童母亲和30名需要康复干预的非自闭症儿童母亲为研究对象。所有受试者均完成生活质量(WHOQOL-BREIF)问卷、14项压力感知量表和满意度问卷。数据分析采用多元三因素方差分析检验。结果。有自闭症儿童的母亲的生活质量得分明显低于无自闭症儿童的母亲(P<0.001)。两组在焦虑评分(P=0.114)和满意度(P=0.079)上差异无统计学意义。年龄、学历、职业等因素对结果有显著影响(P<0.05)。此外,与接受康复治疗超过6个月的母亲相比,接受康复治疗不足1个月的母亲的生活质量更低(P=0.003),焦虑水平更高(P=0.025)。结论。在所有被研究的母亲中,有自闭症儿童的中年家庭主妇的平均生活质量得分最低。与没有受过大学教育的母亲相比,受过大学教育的母亲报告的满意度水平较低,表明对其康复结果的期望水平更高。实际意义。研究结果可应用于管理自闭症儿童及其家庭的康复服务。
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