COVID-19 PANDEMİSİNİN SEREBRAL PALSİ’Lİ ÇOCUKLAR ÜZERİNE ETKİSİNİN İNCELENMESİ

Sevda Adar, Nuran Eyvaz, Faruk Emre Yulcu, Hasan Toktaş, Ü. Dündar, Mehmet Nuri Konya
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Abstract

Objective: The purpose of this study was to examine the sustainability of the treatment of children with cerebral palsy (CP) during the pandemic, the physical and psychosocial impact of the pandemic on children, and the fear of COVID-19 among parents. Materials and Methods: The authors' questionnaire and the COVID-19 fear scale were completed by 350 parents who were reachable and willing to participate in the study. Results: Of the 210 children who received an education, 46 (21.9%) could not participate in online education. 123 (63.4%) of 194 children who received cognitive education and 108 (78.8%) of 137 children who received physiotherapy could not continue. According to family reports, 26.3% of children had worse physical development, 21.1% had worse sleep quality, 11.7% had worse linguistic skills, and 39.1% of children had higher levels of anxiety than before the pandemic. The mean COVID-19 fear scale score of the parents who stated that their child's physical development was worse compared to before the pandemic (18.23±5.63) was higher than that of the parents who stated that there was no change in their child's physical development (16.91±5.26) (p=0.031). The mean COVID-19 fear scale score of the parents who stated that their child's anxiety was higher than before the pandemic (18.02±5.49) was higher than the parents who stated that there was no change in their child's anxiety (16.81±5.28) (p=0.04). Conclusion: During the pandemic period, rehabilitation of children with CP was interrupted and children were affected physically and psychosocially. Family-centered approaches and telerehabilitation opportunities should be studied for future periods.
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目的:本研究的目的是检查大流行期间脑瘫(CP)儿童治疗的可持续性,大流行对儿童的身体和心理社会影响以及父母对COVID-19的恐惧。材料与方法:由350名可联系到并愿意参与研究的家长完成作者问卷和COVID-19恐惧量表。结果:210名接受教育的儿童中,有46名(21.9%)无法参与在线教育。194例接受认知教育的患儿中有123例(63.4%)不能继续,137例接受物理治疗的患儿中有108例(78.8%)不能继续。根据家庭报告,26.3%的儿童身体发育较差,21.1%的儿童睡眠质量较差,11.7%的儿童语言技能较差,39.1%的儿童焦虑水平高于疫情前。认为孩子身体发育比疫情前差的家长的新冠肺炎恐惧量表平均得分(18.23±5.63)高于认为孩子身体发育没有变化的家长的平均得分(16.91±5.26)(p=0.031)。认为孩子焦虑程度高于疫情前的家长的新冠肺炎恐惧量表平均得分(18.02±5.49)高于认为孩子焦虑程度没有变化的家长的平均得分(16.81±5.28)(p=0.04)。结论:大流行期间,CP患儿的康复受到干扰,身体和心理社会受到影响。今后应研究以家庭为中心的办法和远程康复机会。
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