Early Intervention and Newborn Screening

IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Infants & Young Children Pub Date : 2021-01-01 DOI:10.1097/IYC.0000000000000181
D. Bailey
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引用次数: 4

Abstract

Both early intervention (EI) programs for infants and toddlers with disabilities and newborn screening (NBS) programs to identify specific disorders shortly after birth rest on the assumption that the best way to prevent or lessen the impact of a disorder is to provide treatment as early as possible. Despite this shared vision, the two programs differ in substantial ways, including historical beginnings and subsequent evolution; program entry and eligibility; service models; evidence, efficacy, and outcomes; roles and responsibilities vis-à-vis families; and financing. Each program is well established and highly successful. But 4 crosscutting issues need to be addressed: (1) documenting meaningful outcomes for children and families; (2) deciding whether and how to provide highly effective yet very expensive treatments; (3) implementing surveillance activities to monitor progress and determine optimal timing for intervention; and (4) identifying appropriate intersections between EI and NBS. Solving these challenges will require national and state leadership, stakeholder engagement, collaboration between EI and NBS, and a significant investment of resources if the promise of maximizing benefit for children and families is to be realized.
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早期干预和新生儿筛查
无论是针对残疾婴幼儿的早期干预(EI)项目,还是针对出生后不久识别特定疾病的新生儿筛查(NBS)项目,都是基于这样一个假设:预防或减轻疾病影响的最佳方式是尽早提供治疗。尽管有共同的愿景,但这两个项目在很多方面存在差异,包括历史起源和后来的演变;项目报名和资格;服务模型;证据、疗效和结果;对-à-vis家庭的作用和责任;和融资。每个项目都建立得很好,非常成功。但需要解决4个横切问题:(1)记录对儿童和家庭有意义的结果;(2)决定是否以及如何提供高效但昂贵的治疗;(3)实施监测活动,监测进展并确定最佳干预时机;(4)确定EI与国家统计局之间的适当交集。解决这些挑战需要国家和州的领导,利益相关者的参与,EI和国家统计局之间的合作,如果要实现儿童和家庭利益最大化的承诺,还需要大量的资源投资。
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来源期刊
CiteScore
1.90
自引率
9.10%
发文量
24
期刊介绍: Infants & Young Children is an interdisciplinary journal focusing on vulnerable children from birth to five years of age and their families. Of special interest are articles involving innovative interventions, summaries of important research developments and their implications for practice, updates for high priority topic areas, balanced presentations of controversial issues, and articles that address issues involving policy, professional training, new conceptual models, and related matters. Although data are often presented primarily to illustrate points, some types of data-based articles may be appropriate.
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