Privacy protection throughout the research data life cycle

IF 0.7 4区 管理学 Q3 INFORMATION SCIENCE & LIBRARY SCIENCE Information Research-An International Electronic Journal Pub Date : 2022-09-15 DOI:10.47989/irpaper938
Live Håndlykken Kvale, P. Darch
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引用次数: 1

Abstract

Introduction. The sharing and reuse of research data is gradually becoming best practice in research. However, multiple frictions exist between realising stakeholders’ ambitions for research and research data sharing and addressing legal, social and cultural imperatives for protecting data subjects’ privacy. Through identifying and addressing frictions between personal privacy and research, our paper offers advice to research data management services on how to approach personal privacy in research data, sharing using the research data life cycle as the context. Method. A three-phase Delphi study on a population comprising twenty-four stakeholders involved in research data curation in Norway. Data were collected during three consecutive rounds over fourteen months. Analysis. The data were analysed qualitatively using themes following exploratory sequential design methods. After three rounds of data collection, the entire corpus of data were connected and analysed thematically according to integrated analysis. Results. The findings show multiple tensions between maintaining research subjects’ right to privacy and advancing research through data sharing. This paper identifies and analyses three particular sources of tension: 1) maintaining trust with the research participants, 2) managing divergent views of privacy in international and intercultural research collaborations and 3) interpreting and applying policy. The divergent motivations and perspectives on privacy held by different stakeholders complicate these tensions. Conclusions. Researchers, research data management support staff and data organizations must reconcile these motivations and resolve tensions throughout the data life cycle, from collection to archiving and eventual sharing. Through dialogue and negotiation, all stakeholders involved in data sharing should aim to respect the research subjects’ own understandings of privacy.
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整个研究数据生命周期的隐私保护
介绍。科研数据的共享和再利用正逐渐成为科研领域的最佳实践。然而,在实现利益相关者的研究抱负和研究数据共享与解决保护数据主体隐私的法律、社会和文化必要性之间存在多种摩擦。通过识别和解决个人隐私与研究之间的摩擦,本文以研究数据生命周期为背景,为研究数据管理服务提供了如何处理研究数据中的个人隐私的建议。方法。对挪威24个参与研究数据管理的利益相关者进行的三阶段德尔菲研究。数据在14个月内连续三轮收集。分析。采用探索性顺序设计方法对数据进行定性分析。经过三轮数据采集,将整个数据语料库连接起来,按照综合分析的方法进行专题分析。结果。调查结果显示,在维护研究对象的隐私权和通过数据共享推进研究之间存在多重紧张关系。本文确定并分析了三个特定的紧张来源:1)与研究参与者保持信任,2)管理国际和跨文化研究合作中对隐私的不同看法,以及3)解释和应用政策。不同利益相关者持有的不同动机和对隐私的看法使这些紧张关系复杂化。结论。研究人员、研究数据管理支持人员和数据组织必须协调这些动机,并解决从收集到归档和最终共享的整个数据生命周期中的紧张关系。通过对话和协商,所有参与数据共享的利益相关者都应该以尊重研究对象自己对隐私的理解为目标。
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来源期刊
Information Research-An International Electronic Journal
Information Research-An International Electronic Journal INFORMATION SCIENCE & LIBRARY SCIENCE-
CiteScore
1.20
自引率
12.50%
发文量
62
审稿时长
45 weeks
期刊介绍: Information Research, is an open access, international, peer-reviewed, scholarly journal, dedicated to making accessible the results of research across a wide range of information-related disciplines. It is published by the University of Borås, Sweden, with the financial support of an NOP-HS Scientific Journal Grant. It is edited by Professor T.D. Wilson, and is hosted, and given technical support, by Lund University Libraries, Sweden.
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