The platforming of human embryo editing: prospecting “disease free” futures

IF 1.3 4区 医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY New Genetics and Society Pub Date : 2021-10-02 DOI:10.1080/14636778.2021.1997578
Ayo Wahlberg, D. Dong, Priscilla Song, Zhu Jianfeng
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引用次数: 5

Abstract

In November 2018, a scientific scandal broke when news emerged that the world’s first gene edited babies had been born in China on the eve of the 2nd International Summit on Human Genome Editing in Hong Kong. He Jiankui had recruited a total of seven couples who were in need of fertility treatment to participate in an effort to clinically apply human embryo editing with the promise that, if successful, their future children would be protected from HIV. While He Jiankui has since been jailed for illegal medical practice and much has been written about his unethical and flawed “experiment,” in this article we suggest that the Hong Kong summit nevertheless marked the moment when human embryo editing came to be platformed. Human embryo editing brings together a complete set of new reproductive and genetic technologies into a total bio-reproductive platform shaped by socio-technical “disease free” imaginaries.
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人类胚胎编辑平台:展望“无疾病”的未来
2018年11月,在香港举行的第二届人类基因组编辑国际峰会前夕,有消息称世界上第一批基因编辑婴儿在中国出生,这引发了一场科学丑闻。贺建奎总共招募了7对需要生育治疗的夫妇参与临床应用人类胚胎编辑的努力,并承诺如果成功,他们未来的孩子将免受艾滋病毒的侵害。尽管何建奎此后因非法医疗行为被判入狱,关于他不道德和有缺陷的“实验”的报道也很多,但在本文中,我们认为,香港峰会标志着人类胚胎编辑成为平台的时刻。人类胚胎编辑将一整套新的生殖和遗传技术汇集到一个由社会技术“无疾病”想象塑造的整体生物生殖平台中。
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来源期刊
New Genetics and Society
New Genetics and Society 生物-生物工程与应用微生物
CiteScore
4.30
自引率
16.70%
发文量
19
审稿时长
>12 weeks
期刊介绍: New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.
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