Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders.

IF 0.4 Q4 OTORHINOLARYNGOLOGY Current Otorhinolaryngology Reports Pub Date : 2023-01-01 DOI:10.1007/s40136-023-00444-7

E M Garden, A Espehana, D Boak, N Gadi, C M Philpott

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Abstract

Purpose of review: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs.

Recent findings: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area.

Summary: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.

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嗅觉和味觉疾病患者倡导和研究重点评论。

综述目的:本文概述了嗅觉和味觉障碍(SATDs)患者面临的挑战，以及为什么患者倡导对解决这些问题至关重要。它包括最近在确定sds的研究重点方面的发现。最近的发现:最近与詹姆斯林德联盟(JLA)进行的优先设定伙伴关系(PSP)已经完成，并确定了SATDs的十大研究重点。英国慈善机构Fifth Sense一直在与患者和医疗保健专业人士合作，推动这一领域的意识、教育和研究。摘要:随着PSP的完成，第五感已经启动了六个研究中心来推进这些优先事项，并与研究人员进行研究，直接回答PSP结果所提出的问题。这六个研究中心涵盖了嗅觉和味觉障碍的不同方面。每个中心都由在各自领域具有专业知识的临床医生和研究人员领导，他们将作为各自中心的倡导者。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Current Otorhinolaryngology Reports Medicine-Surgery

CiteScore

1.00

自引率

16.70%

发文量

期刊介绍： This journal aims to offer expert review articles on the most significant recent developments in the field of otorhinolaryngology. By providing clear, insightful, balanced contributions, the journal intends to serve all those involved in the diagnosis and treatment of ear, nose, throat, and head and neck disorders. We accomplish this aim by appointing international authorities to serve as Section Editors in key subject areas across the field. Section Editors select topics for which leading experts contribute comprehensive review articles that emphasize new developments and recently published papers of major importance, highlighted by annotated reference lists. An Editorial Board of more than 20 internationally diverse members reviews the annual table of contents, ensures that topics include emerging research, and suggests topics of special importance to their country/region. Topics covered may include chronic rhinosinusitis; implantable devices; neurolaryngology; otolaryngic allergy; robotic surgery; sleep apnea; skull base surgery; thyroid surgery; and quality and outcomes.

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