Relationships and dynamics in families with a child with a kidney transplant—A study of parents' everyday life experiences

IF 1.5 4区 医学 Q3 NURSING Journal of renal care Pub Date : 2023-03-22 DOI:10.1111/jorc.12465
Hanne Agerskov RN, PhD, Helle C. Thiesson MD, PhD, Helen Schultz RN, PhD, Birthe D. Pedersen RN, PhD
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Abstract

Background

Paediatric kidney transplantation is often the best choice of treatment for kidney failure with replacement therapy and represents an important change in the child's well-being. There are, however, still a number of challenges in addition to the parental role. The magnitude of intensive parental caregiving and support required by children with a kidney transplant could be disruptive to family relationships and dynamics.

Objective

To explore the experiences of family relationships and dynamics among parents of a child with a kidney transplant.

Design

An explorative study using a qualitative method.

Participants

Twelve parents (seven mothers and five fathers) of seven children with a kidney transplant were included.

Approach

A phenomenological–hermeneutic approach was applied.

Method

Semistructured, individual interviews were conducted. The data were analysed using Ricoeur's theory of interpretation on three levels: naïve reading, structural analysis and critical interpretation and discussion.

Findings

Three themes were generated: Emotions during ups and downs in everyday life; Balancing different needs among children; and Opportunities and having consideration in the family.

Conclusion

Relationships between parents that are based on mutual emotional support are significant and essential during periods of severe illness in a child. Parents who are alone or emotionally marked by their child's disease history feel vulnerable and struggle to overcome challenges. Different health situations among siblings lead to challenges in bringing up the children and emotional dilemmas among parents that impact family dynamics. Resilience in parents is a shifting phenomenon that can influence how they deal with family relationships and dynamics.

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肾移植患儿家庭的关系和动态--父母日常生活经验研究。
背景:小儿肾移植通常是治疗肾衰竭替代疗法的最佳选择,是儿童福祉的重要改变。然而,除了父母的角色外,还有许多挑战。肾移植患儿需要父母大量的照顾和支持,这可能会破坏家庭关系和动力:探讨肾移植患儿父母在家庭关系和动态方面的经验:设计:采用定性方法进行探索性研究:参与者:七名肾移植患儿的十二名父母(七名母亲和五名父亲):方法:采用现象学-遗传学方法:方法:进行了半结构化的个别访谈。采用呂科爾的詮釋理論,從三個層次對資料進行分析:天真解讀、結構分析和批判性詮釋與討論:产生了三个主题结论:父母之间的关系建立在相互尊重的基础上:结论:在儿童重病期间,建立在相互情感支持基础上的父母之间的关系是重要和必要的。孤身一人或因孩子的病史而在情感上留下烙印的父母会感到脆弱,并努力克服困难。兄弟姐妹之间不同的健康状况会给抚养子女带来挑战,父母之间的情感困境也会影响家庭动态。父母的复原力是一种不断变化的现象,会影响他们如何处理家庭关系和动态。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of renal care
Journal of renal care Nursing-Advanced and Specialized Nursing
CiteScore
3.50
自引率
5.30%
发文量
36
期刊介绍: The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA). The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given. The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.
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