Path analysis of illness uncertainty and psychosocial adaptation of patients with Marfan syndrome.

IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS European Journal of Cardiovascular Nursing Pub Date : 2024-03-12 DOI:10.1093/eurjcn/zvad063
Sujin Kim, Yeonsoo Jang, JiYeon Choi, Kijun Song, Jae-Kwan Song, Mona Choi
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Abstract

Aims: Marfan syndrome (MFS) is a genetic disorder that causes sudden or chronic cardiovascular problems, which can be fatal. Since MFS patients require regular close medical observation, it is important to understand the factors and pathways associated with psychosocial adaptation to the disease. This study aimed to identify the relationships among illness uncertainty, uncertainty appraisal, and psychosocial adaptation in MFS patients using path analysis.

Method and results: This descriptive cross-sectional survey study was conducted from October 2020 to March 2021, in compliance with STROBE guidelines. Using data from 179 participants aged older than 18 years, we constructed a hypothetical path model to identify determinants of illness uncertainty, uncertainty appraisal, and psychosocial adaptation. In the path analysis, disease severity, illness uncertainty, anxiety, and social support were significant factors influencing MFS patients' psychosocial adaptation. Disease severity and illness uncertainty exerted direct effects, while anxiety and social support exerted both direct and indirect (through illness uncertainty) effects. Finally, anxiety showed the greatest total effect.

Conclusion: These findings are useful for enhancing MFS patients' psychosocial adaptation. Medical professionals should focus on managing disease severity, decreasing anxiety, and increasing social support.

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马凡氏综合征患者疾病不确定性与社会心理适应的路径分析。
目的:马凡综合征(MFS)是一种遗传性疾病,可导致突发性或慢性心血管问题,甚至致命。由于马凡氏综合征患者需要定期接受严密的医学观察,因此了解与该疾病相关的社会心理适应因素和途径非常重要。本研究旨在利用路径分析确定 MFS 患者的疾病不确定性、不确定性评价和社会心理适应之间的关系:这项描述性横断面调查研究于 2020 年 10 月至 2021 年 3 月进行,符合 STROBE 指南。我们利用 179 名 18 岁以上参与者的数据构建了一个假设路径模型,以确定疾病不确定性、不确定性评估和社会心理适应的决定因素。在路径分析中,疾病严重程度、疾病不确定性、焦虑和社会支持是影响 MFS 患者社会心理适应的重要因素。疾病严重程度和疾病不确定性产生了直接影响,而焦虑和社会支持则产生了直接和间接(通过疾病不确定性)影响。最后,焦虑的总影响最大:这些研究结果有助于提高 MFS 患者的社会心理适应能力。医务人员应将重点放在控制疾病严重程度、减少焦虑和增加社会支持上。
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来源期刊
European Journal of Cardiovascular Nursing
European Journal of Cardiovascular Nursing CARDIAC & CARDIOVASCULAR SYSTEMS-NURSING
CiteScore
5.10
自引率
10.30%
发文量
247
审稿时长
6-12 weeks
期刊介绍: The peer-reviewed journal of the European Society of Cardiology’s Council on Cardiovascular Nursing and Allied Professions (CCNAP) covering the broad field of cardiovascular nursing including chronic and acute care, cardiac rehabilitation, primary and secondary prevention, heart failure, acute coronary syndromes, interventional cardiology, cardiac care, and vascular nursing.
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