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Interviewing people on sensitive topics: challenges and strategies 就敏感话题采访民众:挑战与策略
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-09-18 DOI: 10.1093/eurjcn/zvae128
Heleen Westland, Sigrid Vervoort, Marijke Kars, Tiny Jaarsma
Interviewing participants on sensitive topics is challenging and requires carefully planned and executed strategies throughout the research process. Sensitive topics have the potential to cause distress to participants or researchers. In this methods paper, strategies for conducting interviews on sensitive topics are described, including choosing the appropriate interview approach, creating a safe and comfortable environment, building rapport, utilizing sensitive and open questioning, reflexivity of the researcher, and awareness of the potential therapeutic effect of the interviews on participants. The strategies are illustrated with experiences from research on sensitive topics.
就敏感话题采访参与者具有挑战性,需要在整个研究过程中精心策划和执行策略。敏感话题有可能给参与者或研究人员造成困扰。在这篇方法论文中,将介绍就敏感话题进行访谈的策略,包括选择适当的访谈方法、营造安全舒适的环境、建立融洽的关系、利用敏感而开放的提问方式、研究人员的反思性以及认识到访谈对参与者的潜在治疗效果。这些策略通过敏感话题研究的经验加以说明。
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引用次数: 0
Prehospital treatment-seeking for acute coronary syndrome in culturally and linguistically diverse immigrant populations: a scoping review 不同文化和语言的移民群体寻求急性冠状动脉综合征院前治疗的情况:范围界定综述
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-09-07 DOI: 10.1093/eurjcn/zvae122
Ararso Baru Olani, Kathryn Eastwood, Judith Finn, Robyn A Clark, Janet E Bray
Aims Studies consistently report longer prehospital delays in culturally and linguistically diverse (CALD) patients experiencing acute coronary syndrome (ACS). A scoping review was conducted to describe terms and methods used to define and identify CALD populations and summarise available evidence on factors related to prehospital delays in ACS studies involving CALD populations. Methods and results We searched six electronic databases for published studies and Google Scholar for grey literature to identify studies on prehospital treatment-seeking in CALD immigrants experiencing ACS. We followed the Joanna Briggs Institute methodological framework for scoping review. Twenty-three studies met our eligibility criteria (quantitative n=17; qualitative n=6; mixed n=1). Terms like ethnicity, migrant or expatriate defined CALD populations. Most studies used a single indicator (e.g., country of birth) to identify CALD cohorts, and only two studies used a theoretical model related to treatment-seeking delays to guide data collection. Most factors affecting prehospital delays in CALD populations were similar to those reported in general populations. A unique finding was a difference in the language used to describe symptoms, which, when translated, changes their meaning and resulted in misinterpretation by healthcare providers (e.g., asfixiarse [translates as asphyxiate/suffocate] used for dyspnoea/shortness of breath in Hispanics). Conclusions Terms and methods used for defining and identifying CALD populations are inconsistent. Studies on factors affecting prehospital treatment-seeking in CALD ACS patients are limited. Future studies should use theoretical models related to treatment-seeking delays to comprehensively explore factors affecting prehospital delays. Additionally, researchers should consider self-reported or multiple indicators to determine CALD status.
目的 研究报告一致显示,文化和语言多样化(CALD)的急性冠状动脉综合征(ACS)患者的院前延误时间更长。我们进行了一次范围界定综述,以描述用于定义和识别 CALD 群体的术语和方法,并总结涉及 CALD 群体的 ACS 研究中与院前延误相关因素的现有证据。方法和结果 我们在六个电子数据库中检索了已发表的研究,并在谷歌学术中检索了灰色文献,以确定有关经历 ACS 的 CALD 移民院前治疗的研究。我们遵循乔安娜-布里格斯研究所(Joanna Briggs Institute)的方法框架进行了范围界定审查。23 项研究符合我们的资格标准(定量研究 17 项;定性研究 6 项;混合研究 1 项)。种族、移民或外籍人士等术语定义了 CALD 群体。大多数研究使用单一指标(如出生国)来识别 CALD 群体,只有两项研究使用了与寻求治疗延迟相关的理论模型来指导数据收集。影响CALD人群院前延误的大多数因素与普通人群中报告的因素相似。一个独特的发现是描述症状的语言不同,翻译时改变了症状的含义,导致医疗服务提供者的误解(例如,西班牙裔人将asfixiarse[翻译为窒息/窒息]用于呼吸困难/呼吸急促)。结论 用于定义和识别 CALD 群体的术语和方法并不一致。关于影响 CALD ACS 患者院前寻求治疗的因素的研究还很有限。未来的研究应使用与寻求治疗延迟相关的理论模型来全面探讨影响院前延误的因素。此外,研究人员应考虑采用自我报告或多种指标来确定 CALD 状态。
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引用次数: 0
Relationship between duration of heart failure and nutritional status in hospitalised patients - preliminary cross-sectional study 住院患者心力衰竭持续时间与营养状况之间的关系--初步横断面研究
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.054
J Furtak, F Sawczak, D Gargula, J Garstka, A Szubarga, M Cierzniak, A Soloch, H Krzysztofiak, M Tomaszewska, M Dudek, E Straburzynska-Migaj, M Kaluzna-Oleksy
Introduction Heart failure (HF) is a chronic disease which is one of the most common causes of hospitalisation of elderly patients. Nutritional status has a crucial impact on the course of disease and survival. HF frequently occurs with nutritional deficits, which may lead to malnutrition and loss of skeletal mass, which makes the prognosis worse. Nutritional status depends also on the patient's economic status, ability to prepare meals, and availability of fresh vegetables and fruits. Knowledge of the connection between the duration of heart failure and nutritional status will enable selection of patients with a higher risk of malnutrition, for which nutritional support should be considered. Purpose The study aims to assess the variability of nutritional status in heart failure patients over the duration of the disease, using the Mini Nutritional Assessment (MNA) and Geriatric Nutritional Risk Index (GNRI). Methods The nutritional status of 134 patients with HF admitted to the cardiology department was assessed with the MNA questionnaire. Additionally, GNRI has counted from serum albumin concentration, weight and height of patients. Patients were divided according to the duration of HF into two groups, one with patients with equal or less than five years of history of disease and the second with patients with HF lasting more than five years. Results The mean age was 52.4±16.9 years, 20.2% of patients were women, and the mean LVEF was 30.3±13.8%. The group of patients with HF lasting equal or less than five years was younger than patients with more than five years of the disease (49.5±16.9 years vs. 57.3 ±16.2 years, p=0.002). There were no significant differences in sex, LVEF and NYHA class between the two groups. According to MNA and GNRI scores, the nutritional status had no differences between the group of patients suffering from HF for more than five years compared with those with HF lasting 5 years or less (p=0.50; p=0.63, respectively). Moreover, the time of HF lasting was not correlated with scores of MNA and GNRI (p=0.33; p=0.22). Conclusions The study found no significant association between the nutritional status of patients and duration of heart failure. Therefore, monitoring nutritional status is crucial, irrespective of the duration of HF. It is necessary to analyse this issue in a larger group of patients with heart failure to identify specifically which patients are at risk of malnutrition and how nutritional status changes with the duration of the disease.
导言心力衰竭(HF)是一种慢性疾病,是老年患者住院治疗的最常见原因之一。营养状况对疾病的进程和存活有着至关重要的影响。心力衰竭常伴有营养缺乏,可能导致营养不良和骨骼质量下降,从而使预后恶化。营养状况还取决于患者的经济状况、准备膳食的能力以及新鲜蔬菜和水果的供应情况。了解心力衰竭持续时间与营养状况之间的关系,就能选择营养不良风险较高的患者,并考虑为其提供营养支持。目的 该研究旨在使用迷你营养评估(MNA)和老年营养风险指数(GNRI)评估心衰患者在病程中营养状况的变化。方法 采用 MNA 问卷对 134 名心内科收治的心力衰竭患者的营养状况进行评估。此外,还根据患者的血清白蛋白浓度、体重和身高计算了 GNRI。根据心房颤动持续时间将患者分为两组,一组是病史等于或少于五年的患者,另一组是心房颤动持续时间超过五年的患者。结果 平均年龄为(52.4±16.9)岁,20.2%的患者为女性,平均 LVEF 为(30.3±13.8)%。心房颤动持续时间等于或少于五年的患者比持续时间超过五年的患者年轻(49.5±16.9 岁对 57.3±16.2岁,P=0.002)。两组患者在性别、LVEF和NYHA分级方面无明显差异。根据 MNA 和 GNRI 评分,心房颤动持续 5 年以上的患者与心房颤动持续 5 年或不足 5 年的患者相比,营养状况没有差异(分别为 p=0.50 和 p=0.63)。此外,心房颤动持续时间与 MNA 和 GNRI 的评分无关(p=0.33;p=0.22)。结论 研究发现,患者的营养状况与心力衰竭持续时间无明显关联。因此,无论心衰持续时间长短,监测营养状况都至关重要。有必要在更大的心衰患者群体中对这一问题进行分析,以具体确定哪些患者有营养不良的风险,以及营养状况如何随病程变化。
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引用次数: 0
Bidirectional relationship between depression and frailty syndrome in Heart Failure patients 心衰患者抑郁与虚弱综合征之间的双向关系
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.098
M Wleklik, M Lisiak, B Nowak, M Jedrzejczyk, K Mirkowski, I Uchmanowicz
Introduction Depression and frailty syndrome (FS) are frequently identified in patients with heart failure (HF) and reported in the literature. The co-occurrence of depression and FS has several pathophysiological mechanisms. Moreover, the two constructs overlap in patients with cardiovascular disease. Depression may be difficult to diagnose in patients with HF due to the co-occurrence of FS, and vice versa. It therefore becomes important to establish the direction of the relationship between the presence of depression and FS in patients with HF. Understanding the relationship and causality between these modifiable variables provides an opportunity to increase patient psychological well-being as well as improve clinical outcomes. Aim of the study Determining the direction of the relationship between depression and FS in patients with HF. Material and Methods The study included 250 patients with HF (69% male, 31% female, mean age: M±SD=72.32±6.73). Data were collected during hospitalization. 50% of patients with HFrEF and 50% of patients with HFpEF were included. Depression was assessed using PHQ-9 (The Patient Health Questionnaire-9). The frailty phenotype was determined using the FRIED criteria (weight loss, feelings of exhaustion, decreased physical activity, slowed gait speed, weakened handgrip strength). The diagnosis of frailty was established when a minimum of 3 criteria were met. Data were considered statistically significant at p-value < 0.05. Results FS was identified in 60% of patients with HF. Patients with FS were older (73.58 ± 6.80 vs. 70.39 ±6.16, p-value=0.0002). In HFrEF patients, the mean PHG-9 score was M±SD=5.97±5.65. In HFpEF patients M±SD=5.85±4.52. There were no differences between patients with preserved and reduced left ventricular fraction in terms of PHQ-9 score (p-value=0.585). Univariate analysis showed that each additional score on the PHQ-9 raised the FRIED score by an average of 0.072 points (0.072; 95% CI: 0.051-0.093, p-value< 0.001) and each additional score on the FRIED scale raised the level of depression according to the PHQ-9 by an average of 2.124 points (2.124; 95% CI: 1.499-2.748, p-value<0.001). In the multivariate model, each additional score on the PHQ-9 raised the FRIED scale score by an average of 0.048 points. (0.048; 95% CI: 0.013-0.083, p-value=0.008) and each additional score on the FRIED scale raised the level of depression according to the PHQ-9 by an average of 0.68 points (0.68; 95% CI: 0.179-1.182, p-value=0.008). Conclusions The co-occurrence of FS and mild depression is identified in hospitalized with HF. There is a bidirectional relationship between frailty and depression in patients with HF: depression increases frailty and vice versa. Recognizing these two constructs during hospitalization should involve providing multidisciplinary continuity of care to prevent rehospitalizations.
导言:抑郁和虚弱综合征(FS)经常在心力衰竭(HF)患者中被发现,并在文献中有所报道。抑郁和虚弱综合征的并发具有多种病理生理机制。此外,这两种症状在心血管疾病患者中也有重叠。由于同时存在 FS,HF 患者可能很难诊断出抑郁症,反之亦然。因此,确定心房颤动患者是否存在抑郁和心房颤动之间的关系变得非常重要。了解这些可改变的变量之间的关系和因果关系有助于提高患者的心理健康水平并改善临床疗效。研究目的 确定心房颤动患者抑郁与心房颤动之间关系的方向。材料和方法 研究纳入 250 名高血压患者(69% 为男性,31% 为女性,平均年龄:M±SD=72.32±6.73)。数据在住院期间收集。其中,50%的高频低氧血症患者和 50%的高频低氧血症患者被纳入研究。抑郁采用 PHQ-9(患者健康问卷-9)进行评估。虚弱表型采用 FRIED 标准(体重下降、疲惫感、体力活动减少、步速减慢、手握力减弱)确定。当至少符合 3 项标准时,即可确诊为虚弱。数据的统计学意义以 p 值 < 0.05 为准。结果 60% 的高血压患者被确诊为虚弱。FS患者年龄较大(73.58 ± 6.80 vs. 70.39 ± 6.16,P值=0.0002)。HFrEF患者的平均PHG-9评分为(M±SD)=5.97±5.65。HFpEF患者的M±SD=5.85±4.52。左心室分数保留和降低的患者在 PHQ-9 评分方面没有差异(P 值=0.585)。单变量分析显示,PHQ-9 每增加一个得分,FRIED 评分平均提高 0.072 分(0.072;95% CI:0.051-0.093,p-value<0.001),FRIED 量表每增加一个得分,PHQ-9 显示的抑郁程度平均提高 2.124 分(2.124;95% CI:1.499-2.748,p-value<0.001)。在多变量模型中,PHQ-9 每增加一个得分,FRIED 量表得分平均增加 0.048 分(0.048; 95% CI: 1.499-2.748; p值<0.001)。(0.048; 95% CI: 0.013-0.083, p-value=0.008),FRIED量表每增加一分,PHQ-9显示的抑郁程度平均增加0.68分 (0.68; 95% CI: 0.179-1.182, p-value=0.008)。结论 在心房颤动住院患者中发现了FS和轻度抑郁并存的情况。心房颤动患者的虚弱与抑郁之间存在双向关系:抑郁增加虚弱,反之亦然。在住院期间认识到这两种情况,应提供多学科的连续性护理,以防止再次住院。
{"title":"Bidirectional relationship between depression and frailty syndrome in Heart Failure patients","authors":"M Wleklik, M Lisiak, B Nowak, M Jedrzejczyk, K Mirkowski, I Uchmanowicz","doi":"10.1093/eurjcn/zvae098.098","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.098","url":null,"abstract":"Introduction Depression and frailty syndrome (FS) are frequently identified in patients with heart failure (HF) and reported in the literature. The co-occurrence of depression and FS has several pathophysiological mechanisms. Moreover, the two constructs overlap in patients with cardiovascular disease. Depression may be difficult to diagnose in patients with HF due to the co-occurrence of FS, and vice versa. It therefore becomes important to establish the direction of the relationship between the presence of depression and FS in patients with HF. Understanding the relationship and causality between these modifiable variables provides an opportunity to increase patient psychological well-being as well as improve clinical outcomes. Aim of the study Determining the direction of the relationship between depression and FS in patients with HF. Material and Methods The study included 250 patients with HF (69% male, 31% female, mean age: M±SD=72.32±6.73). Data were collected during hospitalization. 50% of patients with HFrEF and 50% of patients with HFpEF were included. Depression was assessed using PHQ-9 (The Patient Health Questionnaire-9). The frailty phenotype was determined using the FRIED criteria (weight loss, feelings of exhaustion, decreased physical activity, slowed gait speed, weakened handgrip strength). The diagnosis of frailty was established when a minimum of 3 criteria were met. Data were considered statistically significant at p-value < 0.05. Results FS was identified in 60% of patients with HF. Patients with FS were older (73.58 ± 6.80 vs. 70.39 ±6.16, p-value=0.0002). In HFrEF patients, the mean PHG-9 score was M±SD=5.97±5.65. In HFpEF patients M±SD=5.85±4.52. There were no differences between patients with preserved and reduced left ventricular fraction in terms of PHQ-9 score (p-value=0.585). Univariate analysis showed that each additional score on the PHQ-9 raised the FRIED score by an average of 0.072 points (0.072; 95% CI: 0.051-0.093, p-value< 0.001) and each additional score on the FRIED scale raised the level of depression according to the PHQ-9 by an average of 2.124 points (2.124; 95% CI: 1.499-2.748, p-value<0.001). In the multivariate model, each additional score on the PHQ-9 raised the FRIED scale score by an average of 0.048 points. (0.048; 95% CI: 0.013-0.083, p-value=0.008) and each additional score on the FRIED scale raised the level of depression according to the PHQ-9 by an average of 0.68 points (0.68; 95% CI: 0.179-1.182, p-value=0.008). Conclusions The co-occurrence of FS and mild depression is identified in hospitalized with HF. There is a bidirectional relationship between frailty and depression in patients with HF: depression increases frailty and vice versa. Recognizing these two constructs during hospitalization should involve providing multidisciplinary continuity of care to prevent rehospitalizations.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"22 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Frailty response in patients with aortic stenosis undergoing transcatheter aortic valve implantation: protocol for a pilot, cluster randomised controlled trial (FRAIL-AS Response Trial) 接受经导管主动脉瓣植入术的主动脉瓣狭窄患者的虚弱反应:群组随机对照试验(FRAIL-AS 反应试验)方案
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.039
N Straiton, D Muller, P Macdonald, A Arriagada, D Roy, N Mills, S Middleton
Background Three in ten severe aortic stenosis patients undergoing transcatheter aortic valve implantation (TAVI) are frail. Frailty correlates with adverse post-procedure patient outcomes, such as higher 1-year mortality, increased adverse events, prolonged hospital stays, and diminished quality of life. Despite the urgency for evidence-based frailty management in this population, research in this area is limited. Methods A pilot, cluster randomised controlled trial to assess the feasibility of implementing a Frailty Response Program intervention in 10 hospital TAVI programs for frail patients with aortic stenosis undergoing valve replacement. The intervention includes an implementation strategy and a Frailty Response Clinical Protocol, focused on malnutrition identification, patient education, general practitioner notification, comprehensive geriatric assessment, and cardiac rehabilitation. Eligible hospitals will be randomised (1:1) to either the intervention or control (standard care). Primary outcome: proportion of patients receiving nutritional assessment upon frailty identification. Secondary outcomes include mortality and hospital admissions, frailty improvement, quality of life, and evidence-based frailty management. Implementation outcomes will be evaluated through a process assessment. Discussion The trial aims to bridge the gap between the recognition of frailty in patients with aortic stenosis undergoing TAVI and the implementation of evidence-based frailty management practices to improve patient outcomes and care quality.
背景接受经导管主动脉瓣植入术(TAVI)的重度主动脉瓣狭窄患者中,每十人中就有三人身体虚弱。体弱与患者术后的不良预后相关,如1年死亡率升高、不良事件增加、住院时间延长和生活质量下降。尽管对这类人群进行循证虚弱管理迫在眉睫,但这方面的研究却很有限。方法 在 10 家医院的 TAVI 项目中对接受瓣膜置换术的主动脉瓣狭窄虚弱患者实施 "虚弱应对计划 "干预的可行性进行试点、分组随机对照试验评估。干预措施包括实施策略和虚弱反应临床协议,重点是营养不良识别、患者教育、全科医生通知、老年病综合评估和心脏康复。符合条件的医院将被随机分配(1:1)接受干预或对照(标准护理)。主要结果:确定虚弱后接受营养评估的患者比例。次要结果包括死亡率和入院率、虚弱程度改善情况、生活质量和循证虚弱管理。实施结果将通过过程评估进行评估。讨论 该试验旨在缩小接受 TAVI 的主动脉瓣狭窄患者体弱识别与实施循证体弱管理实践之间的差距,以改善患者预后和护理质量。
{"title":"Frailty response in patients with aortic stenosis undergoing transcatheter aortic valve implantation: protocol for a pilot, cluster randomised controlled trial (FRAIL-AS Response Trial)","authors":"N Straiton, D Muller, P Macdonald, A Arriagada, D Roy, N Mills, S Middleton","doi":"10.1093/eurjcn/zvae098.039","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.039","url":null,"abstract":"Background Three in ten severe aortic stenosis patients undergoing transcatheter aortic valve implantation (TAVI) are frail. Frailty correlates with adverse post-procedure patient outcomes, such as higher 1-year mortality, increased adverse events, prolonged hospital stays, and diminished quality of life. Despite the urgency for evidence-based frailty management in this population, research in this area is limited. Methods A pilot, cluster randomised controlled trial to assess the feasibility of implementing a Frailty Response Program intervention in 10 hospital TAVI programs for frail patients with aortic stenosis undergoing valve replacement. The intervention includes an implementation strategy and a Frailty Response Clinical Protocol, focused on malnutrition identification, patient education, general practitioner notification, comprehensive geriatric assessment, and cardiac rehabilitation. Eligible hospitals will be randomised (1:1) to either the intervention or control (standard care). Primary outcome: proportion of patients receiving nutritional assessment upon frailty identification. Secondary outcomes include mortality and hospital admissions, frailty improvement, quality of life, and evidence-based frailty management. Implementation outcomes will be evaluated through a process assessment. Discussion The trial aims to bridge the gap between the recognition of frailty in patients with aortic stenosis undergoing TAVI and the implementation of evidence-based frailty management practices to improve patient outcomes and care quality.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"39 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effectiveness of supportive management programs in caregivers of patients with heart failure: a systemartic review 心力衰竭患者护理人员支持性管理计划的有效性:系统综述
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.021
N Vouri, M Kyriakou, K Hadjiyiasemi, A Malaktou, K Philippou, P Sourtzi, E Lambrinou
Introduction Supportive management programs involving caregivers of heart failure (HF) patients may be beneficial not only for the patient, but also for the caregiver. This study aims to investigate the effectiveness of supportive management programs for caregivers in terms of quality of life (QoL), depressive and/or anxiety symptoms and caregivers’ burden. Methods A systematic review was conducted in order to identify interventional studies delivering supportive management programs to dyads and evaluating the effectiveness for caregivers in terms of their QoL, depressive symptoms and burden. A systematic search in PubMed, CINAHL, and the Cochrane Library was performed. Inclusion and exclusion criteria and the Preferred Reporting Items (PRISMA) statement checklist were used. Fourteen randomized (RCT’s) and interventional studies were included. Results Fourteen articles were included in the review from a pool of thirty-five papers. A large heterogeneity was observed among the studies regarding several aspects; the intervention as such (e.g psychological support, cognitive behavioral therapy), the duration of the follow- up period and the method that the intervention was delivered (e.g telephone conducts, home visits). Another striking feature was the variety of outcomes that were studied. The most common outcomes were: anxiety and depressive symptoms, burden and impaired quality of life. Conclusions Supportive care management programs are beneficial for both, the patients and the caregivers. It provides the supporting environment for the best possible results and outcomes and most importantly quality of life of the patients and the caregivers.
导言:有心力衰竭(HF)患者护理者参与的支持性管理项目不仅对患者有益,对护理者也有好处。本研究旨在从生活质量(QoL)、抑郁症状和/或焦虑症状以及护理人员负担等方面探讨护理人员支持性管理项目的有效性。方法 进行了一项系统性综述,以确定为二人组提供支持性管理项目的干预性研究,并从生活质量、抑郁症状和负担方面评估其对照顾者的有效性。研究人员在 PubMed、CINAHL 和 Cochrane 图书馆进行了系统性检索。采用了纳入和排除标准以及首选报告项目(PRISMA)声明清单。共纳入 14 项随机研究(RCT)和干预研究。结果 在 35 篇论文中,有 14 篇被纳入综述。这些研究在干预措施(如心理支持、认知行为疗法)、随访时间和干预方法(如电话指导、家访)等方面存在很大的异质性。另一个显著特点是所研究的结果多种多样。最常见的结果是:焦虑和抑郁症状、负担和生活质量下降。结论 支持性护理管理计划对患者和护理人员都有好处。它提供了一个支持性环境,使患者和护理人员都能获得最佳效果和结果,最重要的是提高了他们的生活质量。
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引用次数: 0
Evaluation of secondary prevention knowledge in patients with coronary syndrome 评估冠状动脉综合征患者的二级预防知识
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.068
G Balint, Z Slezakova
Background/introduction Patient education is a crucial component in the care of patients with coronary syndrome. Nursing has an important role in disease prevention and health promotion. More than half of patients with coronary artery disease have limited knowledge which is associated with low commitment to lifestyle modification, increased hospitalizations and higher risk of mortality. The core competencies of the nurses is to promote, maintain, and restore the health of individuals in preventive care. Knowledge assessment can support nurses to plan educational strategies to address the information needs of their patients, providing effective support in secondary prevention. Purpose (1) To assess secondary prevention knowledge in patients with coronary syndrome and (2) to compare knowledge levels among groups of patients aged <60 years and aged >60 years. Methods This was a cross-sectional study of hospitalised patients with coronary syndrome. The Coronary Artery Diseases Education Questionnaire (CADE-Q II) was used to evaluate knowledge. CADE-Q II has 31 items with 4 possible answers. Questions are related to health status, risk factors, exercise, nutrition, and psychosocial risk. The maximum score is 93, with higher scores indicating greater knowledge. Descriptive analysis of the CADE-Q II was performed. SPSS Version 22 was used for analysis, and the level of significance was set at 0.05 for all tests. No items were missing. Results We included 155 patients; mean age 58,26±8,37; 22 % female; 78 % male; 56 % < 60 years old; 44 % > 60 years old; 71 % hypertension; 22 % diabetes; 32 % smokers. Mean knowledge score of participants was 61,4/93. Patients obtained values of completely correct answers in the following areas: health status 55 %; risk factors 47 %; exercise 64 %; nutrition 50 %; psychosocial risk 64 %. The level of knowledge based on the scores obtained: great 0 %; good 37 %; acceptable 55 %; poor 7 %; inadequate 1 %. Within the age groups, we obtained statistically significant results, patients aged <60 years got score 63,2/93; patients aged >60 years got score 59,0/93 (p=0.012); in the exercise domain, patients aged <60 years got score 16,5/21; patients aged >60 years got score 13,9/21 (p=0.001); in the psychosocial domain, patients aged <60 years got score 10,9/15; patients aged >60 years got score 9,7/15 (p=0.034). Conclusion The results of study point to a lower of knowledge of patients with coronary syndrome regarding their disease and factors affecting cardiovascular risk in all studied domains. The use of an assessment tool in patients with coronary syndrome allows nurses to plan educational process, providing effective support in prevention. Adequate information, promotion of health literacy of patients are an essential part of prevention and minimization of risk factors. Nurses during the nursing process by using CADE-Q II ought to promote knowledge and atti
背景/简介 患者教育是冠状动脉综合征患者护理的重要组成部分。护理工作在预防疾病和促进健康方面发挥着重要作用。半数以上的冠心病患者对冠心病的认识有限,这与他们对改变生活方式的决心不足、住院次数增加和死亡风险较高有关。护士的核心能力是在预防性护理中促进、维护和恢复个人健康。知识评估可帮助护士规划教育策略,满足患者的信息需求,为二级预防提供有效支持。目的 (1) 评估冠状动脉综合征患者的二级预防知识;(2) 比较年龄为 60 岁和 60 岁以上两组患者的知识水平。方法 这是一项针对冠状动脉综合征住院患者的横断面研究。采用冠状动脉疾病教育问卷(CADE-Q II)评估知识水平。CADE-Q II 有 31 个项目,4 个可能的答案。问题涉及健康状况、风险因素、运动、营养和社会心理风险。最高分为 93 分,分数越高表示知识越丰富。对 CADE-Q II 进行了描述性分析。分析采用 SPSS 22 版,所有检验的显著性水平均定为 0.05。所有项目均无缺失。结果 共纳入 155 名患者;平均年龄(58.26±8.37)岁;22 % 为女性;78 % 为男性;56 % 为 60 岁;44 % 为 60 岁;71 % 为高血压患者;22 % 为糖尿病患者;32 % 为吸烟者。参与者的平均知识得分为 61.4/93。患者在以下方面的答案完全正确:健康状况 55%;风险因素 47%;运动 64%;营养 50%;社会心理风险 64%。根据获得的分数,知识水平为:很好 0 %;好 37 %;可以接受 55 %;差 7 %;不足 1 %。在各年龄组中,我们得出了具有统计学意义的结果:60 岁患者的得分为 63.2/93;60 岁患者的得分为 59.0/93(P=0.012);在运动方面,年龄为 60 岁的患者得分为 16.5/21;年龄为 60 岁的患者得分为 13.9/21(P=0.001);在社会心理方面,年龄为 60 岁的患者得分为 10.9/15;年龄为 60 岁的患者得分为 9.7/15(P=0.034)。结论 研究结果表明,冠状动脉综合征患者对自己的疾病和影响心血管风险的因素在所有研究领域的了解程度较低。在冠状动脉综合征患者中使用评估工具可以让护士规划教育过程,为预防工作提供有效支持。为患者提供充足的信息、提高其健康素养是预防和尽量减少风险因素的重要组成部分。在护理过程中,护士应使用 CADE-Q II 来宣传有关保护心脏的生活方式的知识和态度。
{"title":"Evaluation of secondary prevention knowledge in patients with coronary syndrome","authors":"G Balint, Z Slezakova","doi":"10.1093/eurjcn/zvae098.068","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.068","url":null,"abstract":"Background/introduction Patient education is a crucial component in the care of patients with coronary syndrome. Nursing has an important role in disease prevention and health promotion. More than half of patients with coronary artery disease have limited knowledge which is associated with low commitment to lifestyle modification, increased hospitalizations and higher risk of mortality. The core competencies of the nurses is to promote, maintain, and restore the health of individuals in preventive care. Knowledge assessment can support nurses to plan educational strategies to address the information needs of their patients, providing effective support in secondary prevention. Purpose (1) To assess secondary prevention knowledge in patients with coronary syndrome and (2) to compare knowledge levels among groups of patients aged <60 years and aged >60 years. Methods This was a cross-sectional study of hospitalised patients with coronary syndrome. The Coronary Artery Diseases Education Questionnaire (CADE-Q II) was used to evaluate knowledge. CADE-Q II has 31 items with 4 possible answers. Questions are related to health status, risk factors, exercise, nutrition, and psychosocial risk. The maximum score is 93, with higher scores indicating greater knowledge. Descriptive analysis of the CADE-Q II was performed. SPSS Version 22 was used for analysis, and the level of significance was set at 0.05 for all tests. No items were missing. Results We included 155 patients; mean age 58,26±8,37; 22 % female; 78 % male; 56 % < 60 years old; 44 % > 60 years old; 71 % hypertension; 22 % diabetes; 32 % smokers. Mean knowledge score of participants was 61,4/93. Patients obtained values of completely correct answers in the following areas: health status 55 %; risk factors 47 %; exercise 64 %; nutrition 50 %; psychosocial risk 64 %. The level of knowledge based on the scores obtained: great 0 %; good 37 %; acceptable 55 %; poor 7 %; inadequate 1 %. Within the age groups, we obtained statistically significant results, patients aged <60 years got score 63,2/93; patients aged >60 years got score 59,0/93 (p=0.012); in the exercise domain, patients aged <60 years got score 16,5/21; patients aged >60 years got score 13,9/21 (p=0.001); in the psychosocial domain, patients aged <60 years got score 10,9/15; patients aged >60 years got score 9,7/15 (p=0.034). Conclusion The results of study point to a lower of knowledge of patients with coronary syndrome regarding their disease and factors affecting cardiovascular risk in all studied domains. The use of an assessment tool in patients with coronary syndrome allows nurses to plan educational process, providing effective support in prevention. Adequate information, promotion of health literacy of patients are an essential part of prevention and minimization of risk factors. Nurses during the nursing process by using CADE-Q II ought to promote knowledge and atti","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"19 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The associationof quality of life and the functioning in the chronic disease among patients after myocardial infarction 心肌梗死患者的生活质量与慢性病功能的关系
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.060
E B Kolarczyk, D Kohanova, A Witkowska, M Szymiczek, A Mlynarska
Background The importance of health-relatedquality of life (HRQoL) and improving functional status in reducing risk factors of myocardial infarction (MI) has also been increasingly recognized. Purpose This study aimed to examine the level of quality of life (QoL) in patients after myocardial infarction (MI) in relation to the degree of functioning in chronic disease. Methods This was a cross-sectional, single-centre study. The study was conducted among 231 patients who were hospitalized for myocardial infarction (MI) after percutaneous coronary intervention (PCI). The WHO Quality of Life Questionnaire (WHOQOL BREF) andthe Chronic Disease Functioning Scale(FCIS) were used. Results The Spearman's correlation coefficient showed a statistically significant correlation (coefficient value 0.5 < |r/rho| ≤ 0.7) between general functioning in chronic disease and the average QoL (rho = 0.56;p < 0.001)and somatic QoL levels(rho = 0.52;p < 0.001), as well as a moderately strong positive correlation with the QoL level on the psychological domain (rho = 0.50;p < 0.001), social domain (rho = 0.48;p < 0.001) and environmental domain (rho = 0.43;p < 0.001). Conclusion Identifying the chronic disease functioning indicator in post-MI patients in relation to HRQoL allows for targeted counseling and secondary prevention of ischemic heart disease (IHD), which translates into a reduced risk of further cardiovascular events and related rehospitalization.
背景 健康相关生活质量(HRQoL)和改善功能状态对降低心肌梗死(MI)风险因素的重要性也日益得到认可。目的 本研究旨在探讨心肌梗死(MI)后患者的生活质量(QoL)水平与慢性疾病功能程度的关系。方法 这是一项横断面单中心研究。研究对象是经皮冠状动脉介入治疗(PCI)后因心肌梗死(MI)住院的 231 名患者。采用了世界卫生组织生活质量问卷(WHOQOL BREF)和慢性病功能量表(FCIS)。结果 斯皮尔曼相关系数显示,慢性病患者的一般功能与平均 QoL(rho = 0.56;p < 0.001)和躯体 QoL 水平(rho = 0.52;p < 0.001),以及心理领域(rho = 0.50;p < 0.001)、社会领域(rho = 0.48;p < 0.001)和环境领域(rho = 0.43;p < 0.001)的 QoL 水平呈中度正相关。结论 确定心肌梗死后患者的慢性病功能指标与 HRQoL 的关系,可提供有针对性的咨询和缺血性心脏病(IHD)的二级预防,从而降低进一步心血管事件和相关再住院的风险。
{"title":"The associationof quality of life and the functioning in the chronic disease among patients after myocardial infarction","authors":"E B Kolarczyk, D Kohanova, A Witkowska, M Szymiczek, A Mlynarska","doi":"10.1093/eurjcn/zvae098.060","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.060","url":null,"abstract":"Background The importance of health-relatedquality of life (HRQoL) and improving functional status in reducing risk factors of myocardial infarction (MI) has also been increasingly recognized. Purpose This study aimed to examine the level of quality of life (QoL) in patients after myocardial infarction (MI) in relation to the degree of functioning in chronic disease. Methods This was a cross-sectional, single-centre study. The study was conducted among 231 patients who were hospitalized for myocardial infarction (MI) after percutaneous coronary intervention (PCI). The WHO Quality of Life Questionnaire (WHOQOL BREF) andthe Chronic Disease Functioning Scale(FCIS) were used. Results The Spearman's correlation coefficient showed a statistically significant correlation (coefficient value 0.5 < |r/rho| ≤ 0.7) between general functioning in chronic disease and the average QoL (rho = 0.56;p < 0.001)and somatic QoL levels(rho = 0.52;p < 0.001), as well as a moderately strong positive correlation with the QoL level on the psychological domain (rho = 0.50;p < 0.001), social domain (rho = 0.48;p < 0.001) and environmental domain (rho = 0.43;p < 0.001). Conclusion Identifying the chronic disease functioning indicator in post-MI patients in relation to HRQoL allows for targeted counseling and secondary prevention of ischemic heart disease (IHD), which translates into a reduced risk of further cardiovascular events and related rehospitalization.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"172 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A pan-Europe comparative review of allied profession roles in cardiac science 泛欧心脏科学联合专业角色比较审查
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.118
N Stain, S Bayne, D Bruce, J Malcolmson
Introduction Over the last 75 years, Cardiac Science (CS) has evolved into a widely practised Allied Profession (AP) throughout Europe. Despite this prominence, there are limited comparative works on AP titles, regulation, scope of practice (SoP) and training routes. The recognition of CS as a profession in the United Kingdom dates from 1948 when the Society for Cardiac Science and Technology (SCST) was established. In the UK, the AP role has evolved into Cardiac Physiologists with education at bachelor’s degree level and Clinical Scientists at master’s level. The SoP has also developed over time, leading to more advanced training and practice. Similar progression in professional titles, SoP, education and training routes also occurred in other European countries. Purpose To compare Allied Professions in Cardiac Science (APCS) including professional nomenclature, regulation, education, SoP, and pan-European identity. Methods Data were collected from November 2023 to January 2024. European and country databases were scrutinised to determine nomenclature, professional status, regulation, and educational requirements. Online translation was used when information was not available in English. Results The analysis of databases revealed 15 APCS roles (Table 1). In 60% of the countries, the role is officially recognised by a professional body that provides advocacy, education, training, and defines SoP (Figure 1). Moreover, 47% of countries operate a mandatory licensing or registration scheme. In 33% of countries, APCS roles are incorporated within the Biomedical Science profession. In the remaining countries, nine alternate titles are used to describe the discipline. In most cases (66%), education is at bachelor’s level, while in others, particularly where recognition is more limited, it is at a vocational level. In four countries (Austria, Ireland, Iceland, and The Netherlands), SoP is broadly in line with the UK, covering electrocardiography, echocardiography, haemodynamics for invasive procedures, implantable devices, and electrophysiology. Conversely, in other countries SoP varies and can include nuclear medicine (Sweden and Denmark) or perfusion and respiratory (Italy and Portugal). Some countries restrict SoP to defined roles such as pacemaker or echo technicians (Spain, Luxembourg, and Switzerland). Notably, Finland, France, and Norway, as well as most Eastern European countries do not recognise APCS roles. Conclusion While APCS roles are widely acknowledged in Europe, they lack visibility compared to other health professions. The variability in professional titles, education, and SoP constrain the development of a unified identity. Collaborative works connecting APCS roles across Europe may enhance identity, improve quality of care and raise the profile of this discipline.
引言 在过去的 75 年中,心脏科学(CS)已发展成为欧洲范围内广泛开展的专职专业(AP)。尽管如此,有关该专业的名称、规章制度、执业范围(SoP)和培训途径的比较研究却十分有限。1948 年,英国成立了心脏科学与技术学会 (SCST),CS 作为一种专业得到了认可。在英国,AP 的角色已演变为受过学士学位教育的心脏生理学家和受过硕士学位教育的临床科学家。随着时间的推移,SoP 也在不断发展,接受更高级的培训和实践。其他欧洲国家在专业职称、SoP、教育和培训途径方面也有类似的发展。目的 比较心脏科学相关专业(APCS),包括专业名称、法规、教育、SoP 和泛欧洲特性。方法 收集 2023 年 11 月至 2024 年 1 月期间的数据。仔细研究了欧洲和各国的数据库,以确定术语、专业地位、法规和教育要求。如果没有英文信息,则使用在线翻译。结果 数据库分析显示有 15 种 APCS 角色(表 1)。在 60% 的国家中,该角色得到了提供宣传、教育、培训和定义 SoP 的专业机构的正式认可(图 1)。此外,47% 的国家实行强制许可或注册制度。在 33% 的国家中,APCS 职务被纳入生物医学科学专业。其余国家则使用了九种替代名称来描述该学科。在大多数情况下(66%),教育水平为学士学位,而在其他国家,特别是认可度较低的国家,教育水平为职业教育。在四个国家(奥地利、爱尔兰、冰岛和荷兰),SoP 与英国大致相同,涵盖心电图、超声心动图、有创手术血流动力学、植入式设备和电生理学。相反,其他国家的 SoP 各不相同,可能包括核医学(瑞典和丹麦)或灌注和呼吸(意大利和葡萄牙)。一些国家将 SoP 限制在起搏器或回声技术员等特定岗位上(西班牙、卢森堡和瑞士)。值得注意的是,芬兰、法国和挪威以及大多数东欧国家都不承认 APCS 职务。结论 虽然 APCS 职位在欧洲得到广泛认可,但与其他医疗专业相比,它们缺乏知名度。专业职称、教育和SoP的差异限制了统一身份的发展。将欧洲各地的 APCS 角色联系起来的协作工作可能会增强认同感、提高护理质量并提升该学科的知名度。
{"title":"A pan-Europe comparative review of allied profession roles in cardiac science","authors":"N Stain, S Bayne, D Bruce, J Malcolmson","doi":"10.1093/eurjcn/zvae098.118","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.118","url":null,"abstract":"Introduction Over the last 75 years, Cardiac Science (CS) has evolved into a widely practised Allied Profession (AP) throughout Europe. Despite this prominence, there are limited comparative works on AP titles, regulation, scope of practice (SoP) and training routes. The recognition of CS as a profession in the United Kingdom dates from 1948 when the Society for Cardiac Science and Technology (SCST) was established. In the UK, the AP role has evolved into Cardiac Physiologists with education at bachelor’s degree level and Clinical Scientists at master’s level. The SoP has also developed over time, leading to more advanced training and practice. Similar progression in professional titles, SoP, education and training routes also occurred in other European countries. Purpose To compare Allied Professions in Cardiac Science (APCS) including professional nomenclature, regulation, education, SoP, and pan-European identity. Methods Data were collected from November 2023 to January 2024. European and country databases were scrutinised to determine nomenclature, professional status, regulation, and educational requirements. Online translation was used when information was not available in English. Results The analysis of databases revealed 15 APCS roles (Table 1). In 60% of the countries, the role is officially recognised by a professional body that provides advocacy, education, training, and defines SoP (Figure 1). Moreover, 47% of countries operate a mandatory licensing or registration scheme. In 33% of countries, APCS roles are incorporated within the Biomedical Science profession. In the remaining countries, nine alternate titles are used to describe the discipline. In most cases (66%), education is at bachelor’s level, while in others, particularly where recognition is more limited, it is at a vocational level. In four countries (Austria, Ireland, Iceland, and The Netherlands), SoP is broadly in line with the UK, covering electrocardiography, echocardiography, haemodynamics for invasive procedures, implantable devices, and electrophysiology. Conversely, in other countries SoP varies and can include nuclear medicine (Sweden and Denmark) or perfusion and respiratory (Italy and Portugal). Some countries restrict SoP to defined roles such as pacemaker or echo technicians (Spain, Luxembourg, and Switzerland). Notably, Finland, France, and Norway, as well as most Eastern European countries do not recognise APCS roles. Conclusion While APCS roles are widely acknowledged in Europe, they lack visibility compared to other health professions. The variability in professional titles, education, and SoP constrain the development of a unified identity. Collaborative works connecting APCS roles across Europe may enhance identity, improve quality of care and raise the profile of this discipline.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"17 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rural dyadic collaboration in heart failure 心力衰竭的农村双向协作
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.091
A Durante, J S Grant, L Abbott, E Bassi, A Dal Molin, L J Graven
Background Dyads (patient/care partner) living with heart failure have shared responsibility for patient care. While theoretical and empirical literature regarding heart failure dyadic care is evolving rapidly, sociocultural contexts are unique and affect relationship dynamics. Yet, dynamics and underlying structures of rural dyadic collaboration in heart failure remains unknown. Purpose The purpose of this secondary analysis was to describe the dynamics and underlying structures of dyadic collaboration in heart failure among rural dyads. Methods A semi-structured interview was used to evaluate the acceptability and usefulness of a 12-week problem-solving intervention in addressing dyadic heart failure-related issues and the development of effective management strategies in week 5. Initially, in the qualitative analysis, an adjusted matrix analysis for each rural dyad was used to identify these dyadic issues and strategies. Subsequently, dynamics and underlying structures of collaboration occurring within these dyads in addressing these issues and strategies were analyzed and thematic codes generated. Finally, a multiple correspondence analysis of dyadic collaboration was performed within these thematic codes and a Benzécri equation used to normalize results, helping to determine the underlying structure and variance explained by the model on a Cartesian graph. Results Twenty-eight living in the rural southeastern U.S. were included. Patients were mostly Caucasian (73.3%), female (60%), married (70%), and college-educated (43%), with an average age of 67.7 years. Care partners were primarily women (n = 50%), Caucasian (82.1%), married (89.3%), and high school-educated (46.4%), with an average age of 64.5 years. Using inductive coding, four codes emerged regarding dyadic relational and collaborative aspects between dyads: role awareness, requesting or receiving help, and improving dyadic communication. XLStat was used for a multiple correspondence analysis (Fig. 1), with checking and then normalizing results using the Benzécri equation on R (Fig.2). There were two gender-determined patterns within dyads. In dyads in which the patient was female and the care partner male, communication improved, requests for assistance were verbalized, and there was an improvement in collaborative orientation. However, partners were unaware of their collaborative role. In contrast, when the care partner was a woman and the patient a man, communication and requests for help were implied, and there was no improvement in collaborative orientation. In this situation, partners had full role awareness. Conclusion(s) These findings suggest gender constitutes a key element in communication, verbalization of needs, and collaborative orientation within rural dyads living with heart failure. The importance of gender roles may be useful in designing future dyadic interventions for rural individuals with heart failure and their informal care partners.
背景心力衰竭患者(患者/护理伙伴)共同承担着护理患者的责任。虽然有关心力衰竭双人护理的理论和实证文献发展迅速,但社会文化背景是独特的,会影响关系的动态发展。然而,农村心力衰竭双人协作的动态和潜在结构仍不为人知。目的 本二次分析的目的是描述农村心力衰竭二元合作的动态和潜在结构。方法 采用半结构式访谈,评估为期 12 周的问题解决干预在解决与心衰相关的问题以及在第 5 周制定有效管理策略方面的可接受性和实用性。首先,在定性分析中,对每个农村二人组进行了调整矩阵分析,以确定这些二人组问题和策略。随后,分析了这些二元组在解决这些问题和策略时的动态和潜在合作结构,并生成了主题代码。最后,在这些主题代码中对二元合作进行多重对应分析,并使用 Benzécri 等式对结果进行归一化,以帮助确定笛卡尔图上模型所解释的基本结构和方差。结果 28 名居住在美国东南部农村地区的患者被纳入研究。患者大多为白种人(73.3%),女性(60%),已婚(70%),受过大学教育(43%),平均年龄为 67.7 岁。护理伙伴主要为女性(n = 50%)、白种人(82.1%)、已婚(89.3%)、高中学历(46.4%),平均年龄为 64.5 岁。通过归纳编码,得出了四种有关二人关系和二人间合作方面的编码:角色意识、请求或接受帮助以及改善二人沟通。我们使用 XLStat 进行了多重对应分析(图 1),并使用 R 的 Benzécri 公式对结果进行了检查和归一化(图 2)。在双人组中有两种性别决定的模式。在患者为女性、护理伙伴为男性的二人组中,沟通得到了改善,求助得到了口头表达,合作导向也得到了改善。然而,护理伙伴并没有意识到自己的合作角色。相反,如果护理伙伴是女性,患者是男性,那么沟通和求助都是默示的,合作导向没有改善。在这种情况下,护理伙伴具有充分的角色意识。结论 这些研究结果表明,在患有心力衰竭的农村二人组中,性别是沟通、口头表达需求和合作取向的关键因素。性别角色的重要性可能有助于为农村心力衰竭患者及其非正规护理伙伴设计未来的双向干预措施。
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European Journal of Cardiovascular Nursing
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