The Art Therapy Experiences of Patients and Their Family Members in Hospice Palliative Care.

Sungeun Park, Hyunjoo Song
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引用次数: 3

Abstract

Purpose: In this study, the researchers closely investigated the psychosocial problems faced by terminal cancer patients and their family members in hospice palliative care units.

Methods: The investigators conducted four sessions of art therapy intervention programs for the terminal cancer patients and their family members, carried out in-depth interviews about the influence of the cancer experience on their family function and quality of life, and analyzed their experiences using grounded theory methodology.

Results: After providing autonomous written informed consent, six pairs of terminally ill cancer patients and their family members, accounting for a total of 17 participants with the inclusion of additional family members who took part sporadically, took part in the art therapy intervention and interviews. The raw data, in the form of verbatim records, were analyzed according to the procedures of grounded theory (open, axial, and selective coding). Through these processes, a total of 154 concepts, 56 subcategories, and 13 categories were identified. Families were classified into four types according to their family function, quality of life, and attitude toward death. Though the art therapy intervention, patients and their family members experienced three stages over time.

Conclusion: This research focused on essential aspects of the family relationships and the art therapy experiences of terminal cancer patients and their family members through an art therapy intervention in the context of hospice palliative care. Based on these observations, the researchers constructed a theoretical rationale for art therapy interventions delivered to patients and their family members in the process of hospice palliative care.

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安宁疗护病患及其家属的艺术治疗经验。
目的:本研究旨在深入探讨癌症末期病人及其家属在安宁疗护病房所面对的心理社会问题。方法:研究者对晚期癌症患者及其家属进行了4期艺术治疗干预项目,对癌症经历对其家庭功能和生活质量的影响进行了深度访谈,并采用扎根理论方法对其经历进行分析。结果:在提供自主书面知情同意书后,6对晚期癌症患者及其家属(包括偶尔参加的家属)共17人参加了艺术治疗干预和访谈。原始数据以逐字记录的形式,按照扎根理论(开放编码、轴向编码和选择性编码)的程序进行分析。通过这些过程,共确定了154个概念,56个子类别和13个类别。根据家庭功能、生活质量和对死亡的态度将家庭分为四种类型。通过艺术治疗干预,患者及其家属经历了三个阶段。结论:本研究通过安宁疗护背景下的艺术治疗干预,关注癌症晚期患者及其家属的家庭关系和艺术治疗体验的本质方面。基于这些观察结果,研究者建构了在安宁疗护过程中对病人及其家属提供艺术治疗干预的理论基础。
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Health Personnel's Knowledge, Attitudes, and Self-Efficacy Related to Providing Palliative Care in Persons with Chronic Diseases. Relationships among Perceptions of Dying Well, Attitudes toward Advance Directives, and Preferences for Advance Directives among Elderly Living Alone. Attitudes towards Death, Perceptions of Hospice Care, and Hospice Care Needs among Family Members of Patients in the Intensive Care Unit. The Art Therapy Experiences of Patients and Their Family Members in Hospice Palliative Care. Barriers to Early Palliative Care.
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