Impact of chronic kidney disease on everyday life: A descriptive qualitative study

IF 1.5 4区医学 Q3 NURSING Journal of renal care Pub Date : 2023-08-13 DOI:10.1111/jorc.12478

Harith Eranga Yapa PhD, BScN (Hons), AFHEA, RN, Shirley Chambers PhD, BHlthSc (Hons), Louise Purtell PhD, Ann Bonner PhD, MA, BAppSc (Nurs), RN

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Abstract

Background

Living with chronic kidney disease is stressful as the disease and its treatments impact on everyday physical, psychological, and social activities. As this disease has a long trajectory, it is important to understand everyday life experiences of those at different points along this trajectory.

Objectives

To explore the impact of chronic kidney disease and its treatment on everyday life.

Design

Descriptive qualitative design

Participants

Twenty-five adults with chronic kidney disease across various grades were purposively recruited.

Approach

Data were collected using semistructured interviews. Deductive content analysis informed by the revised Wilson and Cleary model was used to analyse data.

Findings

There were four themes. Theme 1, experiencing deterioration of kidney function, reflected the physical and psychological problems experienced by participants. Theme 2, changes that happened to me and my family, explained the subsequent limitations in their physical, social and role functioning. Theme 3, responding to a new normal, identified adjustments needed in everyday life to cope with the disease and its treatments. The final theme, thinking ahead and making a decision, captured the future plans and decisions needed while living with chronic kidney disease.

Conclusions

People with chronic kidney disease experience complex challenges such as greater symptom burden and functional limitations across the disease grades which impact on their everyday life. Nurses' recognition of these challenges is crucial for identifying and addressing unmet needs. Early individualised interventions, such as routine symptom assessment and management strategies that improve the wellbeing of people are needed.

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慢性肾病对日常生活的影响：一项描述性定性研究。

背景：慢性肾脏病及其治疗对患者的日常生理、心理和社交活动都会产生影响，因此慢性肾脏病患者的生活压力很大。由于这种疾病的病程较长，因此了解处于不同阶段的患者的日常生活经历非常重要：探索慢性肾脏病及其治疗对日常生活的影响：设计：描述性定性设计参与者：有目的地招募 25 名不同年级的慢性肾脏病成人患者：方法：采用半结构式访谈收集数据。采用威尔逊和克利里修订模式的演绎内容分析法对数据进行分析：共有四个主题。主题 1 "肾功能恶化 "反映了参与者经历的生理和心理问题。主题 2 "发生在我和我的家人身上的变化 "解释了他们随后在身体、社交和角色功能方面受到的限制。主题 3 "应对新常态 "指出了为应对疾病及其治疗而需要在日常生活中做出的调整。最后一个主题 "展望未来并做出决定 "反映了慢性肾脏病患者在生活中所需的未来计划和决定：结论：慢性肾脏病患者面临着复杂的挑战，如更大的症状负担和各疾病等级的功能限制，这对他们的日常生活产生了影响。护士认识到这些挑战对于识别和解决未满足的需求至关重要。需要尽早采取个性化干预措施，如常规症状评估和管理策略，以改善患者的福祉。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of renal care Nursing-Advanced and Specialized Nursing

CiteScore

3.50

自引率

5.30%

发文量

期刊介绍： The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA). The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given. The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.