在数据提供者和相关公民之间:瑞士精准公共卫生的参与探索。

IF 3.5 2区 文学 Q1 COMMUNICATION Public Understanding of Science Pub Date : 2024-01-01 Epub Date: 2023-07-17 DOI:10.1177/09636625231183265
Nolwenn Bühler, Annika Frahsa, Réjane Morand Bourqui, Natalie Von Götz, Murielle Bochud, Francesco Panese
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引用次数: 0

摘要

这篇实证文章探讨了研究组织者与参与者之间的交换与互惠动态。我们借鉴生物经济和价值评估方面的文献,分析了瑞士一项精准公共卫生研究试点阶段中,同组人员对其所从事的 "临床劳动 "的回报期望。基于对该研究队列的人种学研究以及与队列成员(n = 37)进行的七个焦点小组的数据,我们确定了四种立场:(1)好公民参与者,(2)关键参与者,(3)关注参与者,以及(4)自我导向参与者。这表明,同龄人的参与仍然是以利他为前提的,但却包含了对国家和科学在公共卫生方面的互惠义务的期望,证实了参与的礼物经济、财政经济和道德经济之间的深刻纠葛。从这些期望中产生的不同价值观--有关环境暴露的可靠科学证据和以社会为导向的公共卫生--提供了有关利益相关者的丰富信息,这可能对未来的精准公共卫生至关重要。
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Between data providers and concerned citizens: Exploring participation in precision public health in Switzerland.

This empirical article explores the dynamics of exchange and reciprocity between cohorters, that is, study organizers, and cohortees, that is, study participants. Drawing on literature on bioeconomy and valuation, we analyze cohortees' expectations in return for the "clinical labor" they perform in the pilot phase of a Swiss precision public health study. Based on an ethnography of this cohort and data from seven focus groups with cohortees (n = 37), we identified four positions: (1) the good citizen participant, (2) the critical participant, (3) the concerned participant, and (4) the self-oriented participant. These reveal that cohortees' participation, still framed in altruistic terms, nevertheless engages expectations about reciprocal obligations of the state and science in terms of public health, confirming the deep entanglement of gift-based, financial, and moral economies of participation. The different values emerging from these expectations-robust scientific evidence about environmental exposure and a socially oriented public health-provide rich indications about stake making which might matter for the future of precision public health.

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来源期刊
CiteScore
7.30
自引率
9.80%
发文量
80
期刊介绍: Public Understanding of Science is a fully peer reviewed international journal covering all aspects of the inter-relationships between science (including technology and medicine) and the public. Public Understanding of Science is the only journal to cover all aspects of the inter-relationships between science (including technology and medicine) and the public. Topics Covered Include... ·surveys of public understanding and attitudes towards science and technology ·perceptions of science ·popular representations of science ·scientific and para-scientific belief systems ·science in schools
期刊最新文献
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