神经退行性疾病的心理干预经验:系统综述和专题综合。

IF 6.6 1区 心理学 Q1 PSYCHOLOGY, CLINICAL Health Psychology Review Pub Date : 2023-09-01 DOI:10.1080/17437199.2022.2073901
Cathryn Pinto, Adam W A Geraghty, Charlotte McLoughlin, Francesco Pagnini, Lucy Yardley, Laura Dennison
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引用次数: 3

摘要

背景:对神经退行性疾病患者的情绪困扰进行心理干预是必要的,但症状的逐渐恶化和残疾的增加可能会给干预带来困难。我们的目的是综合参与和使用神经退行性疾病的心理干预的经验,并确定相关的障碍和促进因素。方法:系统检索6个电子数据库,筛选结果。我们纳入了定性和混合方法研究,报告了患者或护理人员对心理干预的看法或经验。提取定性数据并按主题进行综合。结果:收录论文34篇,涵盖了一系列疾病和干预措施。通过灵活的干预形式和根据神经退行性疾病患者的具体需求进行调整,促进了参与。由于身体和认知症状以及干预所需的时间和精力,干预措施有时难以获得或负担沉重。参与者的接受程度和准备程度往往不同,并影响了对干预的参与。在不同的干预措施中,参与者经历了广泛的好处,包括洞察力、视角、自我效能、情绪和人际关系的变化。结论:尽管神经退行性疾病患者和护理人员从心理干预中获益,但需要减轻负担的适应和针对特定疾病环境的敏感定制,以提高可接受性和参与度。
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Experiences of psychological interventions in neurodegenerative diseases: a systematic review and thematic synthesis.

Background: Psychological interventions for managing emotional distress in neurodegenerative diseases are needed, but progressive worsening of symptoms and increasing disability might pose difficulties with engagement. We aimed to synthesise the experiences of engaging with and using psychological interventions in neurodegenerative diseases and identify relevant barriers and facilitators. Methods: Systematic searches were conducted in six electronic databases and results were screened. We included qualitative and mixed methods studies reporting patient or caregivers' views or experiences of psychological interventions. Qualitative data were extracted and thematically synthesised. Results: 34 papers were included, covering a range of diseases and interventions. Engagement was facilitated by flexible intervention formats and tailoring to the specific needs of people with neurodegenerative diseases. Interventions were sometimes inaccessible or burdensome because of physical and cognitive symptoms, and the time and effort required for the intervention. Participants' levels of acceptance and readiness often differed and influenced engagement with the intervention. Across different interventions, participants experienced wide-ranging benefits including changes in insight, perspective, self-efficacy, emotions and relationships. Conclusion: Although people with neurodegenerative diseases and caregivers experience benefits from psychological interventions, burden-reducing adaptations and sensitive tailoring to the specific disease context is required to improve acceptability and engagement.

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来源期刊
Health Psychology Review
Health Psychology Review PSYCHOLOGY, CLINICAL-
CiteScore
21.30
自引率
0.00%
发文量
28
期刊介绍: The publication of Health Psychology Review (HPR) marks a significant milestone in the field of health psychology, as it is the first review journal dedicated to this important and rapidly growing discipline. Edited by a highly respected team, HPR provides a critical platform for the review, development of theories, and conceptual advancements in health psychology. This prestigious international forum not only contributes to the progress of health psychology but also fosters its connection with the broader field of psychology and other related academic and professional domains. With its vital insights, HPR is a must-read for those involved in the study, teaching, and practice of health psychology, behavioral medicine, and related areas.
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