台湾自闭症谱系障碍儿童家长应对策略的质性研究。

IF 2.4 3区 医学 Q1 NURSING Journal of Nursing Research Pub Date : 2023-06-01 DOI:10.1097/jnr.0000000000000553
Wei-Chih Chin, Hsueh-Ling Chang, Kuo-Yu Chao
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引用次数: 0

摘要

背景:自闭症谱系障碍(ASD)儿童在社会交往、语言交流和刻板行为模式方面存在障碍。自闭症儿童的父母比其他残疾儿童或正常发育儿童的父母承受更大的压力、更多的抑郁和焦虑。残疾儿童的父母制定应对策略,以抵消抚养有特殊需要的孩子所带来的压力。了解应对策略,以帮助抵消与养育自闭症儿童相关的压力,可能会提高自闭症儿童父母的幸福感,提高为这些儿童提供的护理质量,并促进更好的亲子关系。目的:本研究旨在探讨台湾家长养育自闭症儿童的应对策略。方法:采用描述性定性研究方法,对面对面访谈收集的数据进行专题分析。采用有目的抽样方法招募了14名自闭症儿童的父母。研究人员采用团队合作的方法进行数据分析,以增加采访记录的可靠性和一致性。团队成员共同讨论编码并确定主题。结果:台湾自闭症儿童的父母采用问题关注和情绪关注两种策略来应对父母教养的心理影响。以问题为中心的策略包括沟通、支持和管理,而以情绪为中心的策略包括接受和适应。调查结果表明,这两种应对策略在处理具体情况和环境时都是有用的。社会和临床支持改善了父母的心理健康和儿童的外部行为。结论/对实践的启示:医疗保健提供者应评估父母如何应对与抚养自闭症儿童有关的压力,并考虑可能影响他们如何接受和适应养育自闭症儿童的文化因素。了解这些变量可以用来制定适当的策略来减轻压力,提高父母和孩子的幸福感。应考虑支持和资源推荐,包括家长支持小组、书籍、基于网络的服务以及与社会工作者或治疗师进行专业咨询的建议。
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Exploring Coping Strategies of Parents of Children With Autism Spectrum Disorder in Taiwan: A Qualitative Study.

Background: Children with autism spectrum disorder (ASD) experience impairments in their social interactions, language communication, and stereotypical patterns of behavior. Parents of children with ASD experience higher levels of stress and more depression and anxiety than parents of children with other disabilities or typically developing children. Parents of children with disabilities develop coping strategies to counteract the stresses associated with raising a child with special needs. Understanding coping strategies to help counteract the stresses associated with parenting a child with ASD may enhance well-being in parents of children with ASD, improve the quality of care provided to these children, and foster better parent-child relationships.

Purpose: The purpose of this study was to explore the coping strategies used by parents in Taiwan parenting a child with ASD.

Methods: In this descriptive qualitative study, thematic analysis was conducted on data collected during face-to-face interviews. Fourteen parents of children with ASD were recruited using purposive sampling. Researchers employed a teamwork approach for data analysis to increase the dependability and consistency of the transcribed interviews. Team members discussed coding and identified the themes collaboratively.

Results: Taiwanese parents of children with ASD coped with the psychological impacts of parenting by employing problem-focused and emotion-focused strategies. Problem-focused strategies included communication, support, and management, whereas emotion-focused strategies included acceptance and adaptation. Findings showed that both coping strategies were useful in addressing specific situations and circumstances. Social and clinical support improved parents' mental health and children's external behaviors.

Conclusions/implication for practice: Healthcare providers should evaluate how parents are coping with the stresses related to raising a child with ASD and consider the cultural factors that might influence how they accept and adapt to parenting children with ASD. Understanding these variables may be used to tailor strategies appropriate to reducing stress and improving the well-being of parents and their children. Support and resource referrals should be considered, including parent support groups, books, web-based services, and recommendations for professional consultations with social workers or therapists.

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来源期刊
CiteScore
4.20
自引率
3.70%
发文量
60
审稿时长
>12 weeks
期刊介绍: ​​​The Journal of Nursing Research (JNR) is comprised of original articles that come from a variety of national and international institutions and reflect trends and issues of contemporary nursing practice in Taiwan. All articles are published in English so that JNR can better serve the whole nursing profession and introduce nursing in Taiwan to people around the world. Topics cover not only the field of nursing but also related fields such as psychology, education, management and statistics.
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