“理想主义者和资本家”:基因组公民科学中的所有权态度和偏好。

IF 1.3 4区 医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY New Genetics and Society Pub Date : 2022-01-01 DOI:10.1080/14636778.2022.2063827
Christi J Guerrini, Jorge L Contreras, Whitney Bash Brooks, Isabel Canfield, Meredith Trejo, Amy L McGuire
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引用次数: 1

摘要

基因组公民科学家对研究成果所有权的观点还没有得到很好的理解,但是它们对于确定参与者期望和项目实践的一致性是有用的,并且可以帮助指导开发管理所有权要求的创新工具和策略的努力。在这里,我们报告了2018年和2019年进行的52次访谈的结果,以了解基因组公民科学利益相关者对研究成果所有权的概念、经验和偏好。受访者确定了四种识别基因组公民科学家在研究成果中的所有权和相关信用利益的方法:通过公地模型共享治理;利益的部分所有权;充分和创造性的归属;进攻性和防御性专利。受访者还同意,任何项目选择的模式至少应最大限度地扩大对研究成果的获取,并酌情在可能的范围内广泛分配控制权和研究利益的权利。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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"Idealists and capitalists": ownership attitudes and preferences in genomic citizen science.

The perspectives of genomic citizen scientists on ownership of research outputs are not well understood, yet they are useful for identifying alignment of participant expectations and project practices and can help guide efforts to develop innovative tools and strategies for managing ownership claims. Here, we report findings from 52 interviews conducted in 2018 and 2019 to understand genomic citizen science stakeholders' conceptualizations of, experiences with, and preferences for ownership of research outputs. Interviewees identified four approaches for recognizing genomic citizen scientists' ownership and related credit interests in research outputs: shared governance via commons models; fractional ownership of benefits; full and creative attribution; and offensive and defensive patenting. Interviewees also agreed that the model selected by any project should at least maximize access to research outputs and, as appropriate and to the extent possible, broadly distribute rights of control and entitlements to research benefits.

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来源期刊
New Genetics and Society
New Genetics and Society 生物-生物工程与应用微生物
CiteScore
4.30
自引率
16.70%
发文量
19
审稿时长
>12 weeks
期刊介绍: New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.
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