招募不同人群进入健康研究的挑战:一个嵌入的社会科学视角。

IF 1.3 4区 医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY New Genetics and Society Pub Date : 2022-01-01 DOI:10.1080/14636778.2022.2115349
Simon M Outram, Sara L Ackerman, Matthew Norstad, Barbara Koenig
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引用次数: 1

摘要

消除卫生差距已成为开展卫生研究的一项核心任务。在下面的论文中,我们探讨了呼吁招募医疗服务不足人群所带来的概念和方法挑战。这种挑战的探索是从嵌入在一个大型临床基因组学研究中的社会科学研究人员的角度进行的。我们认为,这些挑战存在于招聘战略的制定、有关理解和解释医疗服务不足经验的数据分析,以及比较医疗服务不足与医疗服务不足经验方面。综上所述,有人认为社会科学家在大型健康研究中扮演着重要的角色,如果成功的话,可以使研究团队和整个社会受益。
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The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.

Addressing health disparities has become a central remit for conducting health research. In the following paper, we explore the conceptual and methodological challenges posed by the call to recruit medically underserved populations. This exploration of challenges is undertaken from the perspective of social science researchers embedded in a large within a clinical genomics research study. We suggest that these challenges are found in respect to the development of recruiting strategies, analysis of the data in respect to understanding and interpreting the experiences of being medically underserved, and in comparing the experiences of being medically underserved compared to not being underserved. By way of conclusion, it is argued that there is important role for social scientists with large health research studies which, if achieved successfully, can benefit study teams and society as a whole.

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来源期刊
New Genetics and Society
New Genetics and Society 生物-生物工程与应用微生物
CiteScore
4.30
自引率
16.70%
发文量
19
审稿时长
>12 weeks
期刊介绍: New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.
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