第二章。生物伦理学法:健康民主的挑战。

Jean-François Delfraissy, Pierre-Henri Duée
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引用次数: 0

摘要

生物伦理学法律规定了管理涉及人体和胚胎的医疗实践和研究的司法框架。科技创新是否需要修改法律?为了回答这个问题,有必要进行初步的反思,以便确定新的平衡,这种平衡尊重伦理原则,促进团结,尊重每个人的自治。CCNE负责组织公众辩论,以生物伦理大会的形式,在伦理反思的区域空间的支持下。这一广泛的经历发生在2018年1月至6月,从中吸取了一些教训,特别是强烈表达了对信息的需求和对医学进步概念的批判性看法。随后,从2019年7月24日至2021年8月2日,随之而来的议会指示和听证会促进了最初法案的发展。因此,生命伦理法的定期审查现在是基于公民参与的立法仲裁构建,体现了法国式的社会参与方式。
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Chapitre 2. La loi de bioéthique : un enjeu de démocratie sanitaire.

The law of bioethics defines the judicial framework for governing medical practices and research involving the human body and the embryo. Does any scientific or technologic innovation warrant a modification of the law? To respond to this question, a preliminary reflection is necessary so as to define new equilibria which respect ethical principles, the promotion of solidarity with respect for the autonomy of each person.The CCNE is charged with organizing public debate, in the form of a general assembly of bioethics, with the support of regional spaces of ethical reflection. This extensive experience took place from January to June 2018 and lead to several lessons, notably the strong expression of a need for information and a critical vision of the notion of medical progress.Then, the parliamentary instruction and hearings that accompanied it, from 24 July 2019 to 2 August 2021, contributed developments to the initial bill. Thus, the periodic review of the law of bioethics is now based on citizen participation in the construction of legislative arbitration, demonstrating the French way of social participation.

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C. Castets-Renard, J. Eynard, Un droit de l’intelligence artificielle, Bruylant, Bruxelles, 2023. Centre de recherche de l’Académie militaire de Saint-Cyr Coëtquidan et la Croix-Rouge française, Les enjeux de l’autonomie des systèmes d’armes létaux, Pédone, Paris, 2022. Chapitre 1. Essais cliniques et bioéthique en Inde. Chapitre 2. L’autonomisation des comités nationaux d’éthique de la recherche en Afrique : perspective historique et enjeux actuels. Chapitre 3. Inégalités dans le dépistage et la prévention du VIH/SIDA.
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