{"title":"以医药授权交易伙伴为基础的分散、全球、可验证的医疗保健证书标准提案。","authors":"Victor Dods, Ben Taylor","doi":"10.30953/bhty.v4.175","DOIUrl":null,"url":null,"abstract":"<p><p>The twin forces of privacy law and data breaches have fundamentally challenged how we collect, store, and share sensitive information. Within this landscape, healthcare information is sacrosanct - and intimately tied to identity and data ownership. Building on prior work with UCLA Health, Genentech (a member of the Roche Group), Sanofi, Amgen, Biogen, and others, we offer this opinion piece to promote the development of a standard for decentralized Verifiable Credentials (VCs). This will empower Authorized Trading Partners (ATPs) in the pharmaceutical supply chain to trade and exchange information in compliance with the US federal law. Starting with credentialing and interoperability for the ATP community, our ultimate goal was to chart a path to a global standard for all health care VCs - providing individuals and health-care professionals control over their own data. By sharing our results and releasing essential components of the work to the public domain, we hope to align and connect with other foundational efforts, thus evolving standards within a truly open framework with broad stakeholder involvement.</p>","PeriodicalId":72422,"journal":{"name":"Blockchain in healthcare today","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2021-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/88/10/BHTY-4-175.PMC9907401.pdf","citationCount":"0","resultStr":"{\"title\":\"A Proposal for Decentralized, Global, Verifiable Health Care Credential Standards Grounded in Pharmaceutical Authorized Trading Partners.\",\"authors\":\"Victor Dods, Ben Taylor\",\"doi\":\"10.30953/bhty.v4.175\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The twin forces of privacy law and data breaches have fundamentally challenged how we collect, store, and share sensitive information. Within this landscape, healthcare information is sacrosanct - and intimately tied to identity and data ownership. Building on prior work with UCLA Health, Genentech (a member of the Roche Group), Sanofi, Amgen, Biogen, and others, we offer this opinion piece to promote the development of a standard for decentralized Verifiable Credentials (VCs). This will empower Authorized Trading Partners (ATPs) in the pharmaceutical supply chain to trade and exchange information in compliance with the US federal law. Starting with credentialing and interoperability for the ATP community, our ultimate goal was to chart a path to a global standard for all health care VCs - providing individuals and health-care professionals control over their own data. By sharing our results and releasing essential components of the work to the public domain, we hope to align and connect with other foundational efforts, thus evolving standards within a truly open framework with broad stakeholder involvement.</p>\",\"PeriodicalId\":72422,\"journal\":{\"name\":\"Blockchain in healthcare today\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-04-28\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/88/10/BHTY-4-175.PMC9907401.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Blockchain in healthcare today\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.30953/bhty.v4.175\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2021/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Blockchain in healthcare today","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.30953/bhty.v4.175","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2021/1/1 0:00:00","PubModel":"eCollection","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
隐私法和数据泄露的双重影响从根本上挑战了我们收集、存储和共享敏感信息的方式。在这种情况下,医疗保健信息是神圣不可侵犯的,与身份和数据所有权密切相关。基于之前与加州大学洛杉矶分校医疗中心(UCLA Health)、基因泰克公司(Genentech,罗氏集团成员)、赛诺菲公司(Sanofi)、安进公司(Amgen)、百健公司(Biogen)和其他公司的合作,我们提出本意见书,以促进分散式可验证凭证(VC)标准的发展。这将使医药供应链中的授权交易伙伴 (ATP) 能够按照美国联邦法律进行交易和信息交换。从 ATP 社区的认证和互操作性开始,我们的最终目标是为所有医疗保健 VC 制定全球标准--让个人和医疗保健专业人员能够控制自己的数据。通过分享我们的成果并向公共领域发布工作的重要组成部分,我们希望与其他基础性工作保持一致和联系,从而在利益相关者广泛参与的真正开放的框架内发展标准。
A Proposal for Decentralized, Global, Verifiable Health Care Credential Standards Grounded in Pharmaceutical Authorized Trading Partners.
The twin forces of privacy law and data breaches have fundamentally challenged how we collect, store, and share sensitive information. Within this landscape, healthcare information is sacrosanct - and intimately tied to identity and data ownership. Building on prior work with UCLA Health, Genentech (a member of the Roche Group), Sanofi, Amgen, Biogen, and others, we offer this opinion piece to promote the development of a standard for decentralized Verifiable Credentials (VCs). This will empower Authorized Trading Partners (ATPs) in the pharmaceutical supply chain to trade and exchange information in compliance with the US federal law. Starting with credentialing and interoperability for the ATP community, our ultimate goal was to chart a path to a global standard for all health care VCs - providing individuals and health-care professionals control over their own data. By sharing our results and releasing essential components of the work to the public domain, we hope to align and connect with other foundational efforts, thus evolving standards within a truly open framework with broad stakeholder involvement.