姑息治疗患者的生活质量评估

Wojciech Statowski, E. Świętochowska
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摘要

背景姑息治疗是一种医疗护理形式,其重点是为患有严重、无法治愈的疾病的患者提供舒适和疼痛缓解。世界卫生组织将生活质量定义为“个人在其生活的文化和价值体系背景下对其生活地位的看法,以及与其目标、期望、标准和关切的关系”。生活质量和姑息医学代表了患者生命末期综合护理和治疗中不可分割的两个方面。本研究的目的是使用WHOQOL-BREF和EQ-5D问卷评估姑息治疗患者的生活质量。材料和方法该研究包括2018年9月至2019年1月期间在临终关怀医院和家中接受姑息治疗的连续100名患者。采用三部分调查过程收集数据,包括:人口统计数据表;WHOQOL-BREF问卷;EQ-5D问卷。结果WHOQOL-BREF问卷对4个领域进行了分析。研究得到如下结果:Domain 1=40.2;域2 = 39.94;域3 = 36.1;域4 = 37.7。根据EQ-5D问卷的指南显示,43%的患者不能行走或行走有严重问题,59%的患者不能或有严重的自我照顾问题,61%的患者不能或有严重的日常活动问题,52%的患者有严重或极端的疼痛/不适,65%的患者非常焦虑或抑郁。结论1。研究表明,接受姑息治疗的患者的生活质量指标较低。2. 根据获得的数据,姑息治疗方案应特别注意通过采取跨学科的方法来改善其资源的生活质量。
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Assessment of the Quality of Life Among Patients under Palliative Care
Abstract Background Palliative care is a form of medical care that focuses on providing comfort and pain relief to patients with severe, incurable diseases. The World Health Organization defines quality of life as “an individual’s perception of their position in life in the context of culture and value systems in which they live and in relation to their goals, expectations, standards and concerns”. Quality of life and palliative medicine represent two aspects that should be inseparable in the comprehensive care and treatment of a patient at the end of life. Objectives The aim of this study was to assess quality of life among patients under palliative care using the WHOQOL-BREF and EQ-5D questionnaire. Material and methods The study included 100 consecutive patients admitted to palliative care between September 2018 and January 2019 being treated in a hospice and at home. A three-part survey process was used to collect data, including the following: Demographic Data Form; WHOQOL-BREF questionnaire; EQ-5D questionnaire. Results The WHOQOL-BREF questionnaire was analyzed for 4 domains. The study obtained the following results: Domain 1=40.2; Domain 2=39.94; Domain 3=36.1; Domain 4=37.7. According to the guidelines of the EQ-5D questionnaire, it was shown that 43% of patients are unable to walk or have serious problems with walking, 59% of patients are unable or have serious problems with self-care, 61% of patients are unable or have serious problems with ordinary activities, 52% of patients have severe or extreme pain/discomfort, 65% of patients are very anxious or depressed. Conclusions 1. The study showed that patients covered by palliative care present low indicators of quality of life. 2. According to the data obtained, palliative care programs should pay special attention to the improvement of quality of life by taking an interdisciplinary approach to its resources.
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