我们走

We Walk Pub Date : 2020-09-15 DOI:10.1515/9781501751417
Amy S. F. Lutz
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引用次数: 2

摘要

在这本文集中,作者公开讲述了她作为一个21岁儿子患有严重自闭症的母亲的经历。作者的人类情感贯穿于每一页,挑战了将自闭症定义为一种疾病或神经多样性的普遍观点。这本书的灵感来自于作者自己的问题:智力和发育障碍者在社会中的地位是什么?作为公民和人类,我们对彼此负有什么责任?谁来替那些不能自己做决定的人做决定呢?对一个没有抽象语言的人来说,宗教的意义是什么?为了探索这些问题,这本书通过严重自闭症的镜头审视了包容、宗教、治疗、友谊等社会问题。在一个公众对自闭症的看法很大程度上是由《生活大爆炸》和《好医生》等电视节目中出现的“古怪天才”塑造的世界里,这本书要求我们把关于这种疾病的辩论集中在那些受其影响最大的人身上。
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We Walk
In this collection of essays, the author writes openly about her experience as a mother of a now twenty-one-year-old son with severe autism. The author's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. The book is inspired by the author's own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, the book examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the “quirky geniuses” featured on television shows like The Big Bang Theory and The Good Doctor, this book demands that we center our debates about this disorder on those who are most affected by its impacts.
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