Pub Date : 2020-10-15DOI: 10.7591/CORNELL/9781501751394.003.0005
Amy S. F. Lutz
This chapter mentions the pharma CBD oral spray, which the author saw on her Facebook feed that had allegedly caused a nine-year-old autistic Puerto Rican boy to utter his first words. It refers to Marie Myung-Ok Lee of Rhode Island, who published a four-part series on Slate about why she decided to give her nine-year-old marijuana. It also speculates whether CBD might help Jonah with the myoclonic seizures he had been experiencing with increasing frequency. The chapter recounts antiseizure drugs that had been prescribed to Jonah as a young child to control his mood but had terrible side effects, such as rapid weight gain. It talks about Jennifer Abbanat, who has been treating her fourteen-year-old son with various cannabis products for several years.
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Pub Date : 2020-10-15DOI: 10.7591/cornell/9781501751394.003.0002
Amy S. F. Lutz
This chapter describes Jonah's life, which is described as an endless onslaught of impositions. It relates the things Jonah learned from the earliest age that were considered difficult and contested for severely autistic children, such as speaking, toilet training, table manners, and basic academic skills. It also mentions Jonah's time in the feeding clinic at the Children's Hospital of Philadelphia, where he was forced to eat. The chapter describes Jonah's diet when he was three years old, which was nothing but pretzels smeared with peanut butter. It examines Jonah's extreme selectivity towards food, which was explained by experts as an overall regression that many autistic kids experience between the ages of one and two.
{"title":"Physical Guidance","authors":"Amy S. F. Lutz","doi":"10.7591/cornell/9781501751394.003.0002","DOIUrl":"https://doi.org/10.7591/cornell/9781501751394.003.0002","url":null,"abstract":"This chapter describes Jonah's life, which is described as an endless onslaught of impositions. It relates the things Jonah learned from the earliest age that were considered difficult and contested for severely autistic children, such as speaking, toilet training, table manners, and basic academic skills. It also mentions Jonah's time in the feeding clinic at the Children's Hospital of Philadelphia, where he was forced to eat. The chapter describes Jonah's diet when he was three years old, which was nothing but pretzels smeared with peanut butter. It examines Jonah's extreme selectivity towards food, which was explained by experts as an overall regression that many autistic kids experience between the ages of one and two.","PeriodicalId":408711,"journal":{"name":"We Walk","volume":"82 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122810032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-10-15DOI: 10.7591/cornell/9781501751394.003.0007
Amy S. F. Lutz
This chapter explains how it is easy for the author to focus on the communicative function of language when a mother has a child with minimal language. It points out how language remains a blunt instrument in the author's house as she paid more attention to equipping Jonah with tools to express his preferences. It also discusses vitriol that was being exchanged online over whether to use the phrase “autistic person” or “person with autism.” The chapter emphasizes the person-first language endorsed by the disability rights movement since the 1980s. It refers to Lydia Brown and other self-advocates that opt for identity-first language, such as “autistic person” or simply “autistic,” as they understand that autism is an inherent part of an individual's identity.
{"title":"Praesidalism","authors":"Amy S. F. Lutz","doi":"10.7591/cornell/9781501751394.003.0007","DOIUrl":"https://doi.org/10.7591/cornell/9781501751394.003.0007","url":null,"abstract":"This chapter explains how it is easy for the author to focus on the communicative function of language when a mother has a child with minimal language. It points out how language remains a blunt instrument in the author's house as she paid more attention to equipping Jonah with tools to express his preferences. It also discusses vitriol that was being exchanged online over whether to use the phrase “autistic person” or “person with autism.” The chapter emphasizes the person-first language endorsed by the disability rights movement since the 1980s. It refers to Lydia Brown and other self-advocates that opt for identity-first language, such as “autistic person” or simply “autistic,” as they understand that autism is an inherent part of an individual's identity.","PeriodicalId":408711,"journal":{"name":"We Walk","volume":"7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132036697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-09-15DOI: 10.1515/9781501751417-008
{"title":"6. All Possible Spaces","authors":"","doi":"10.1515/9781501751417-008","DOIUrl":"https://doi.org/10.1515/9781501751417-008","url":null,"abstract":"","PeriodicalId":408711,"journal":{"name":"We Walk","volume":"14 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123899907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In this collection of essays, the author writes openly about her experience as a mother of a now twenty-one-year-old son with severe autism. The author's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. The book is inspired by the author's own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, the book examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the “quirky geniuses” featured on television shows like The Big Bang Theory and The Good Doctor, this book demands that we center our debates about this disorder on those who are most affected by its impacts.
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Pub Date : 2020-09-15DOI: 10.1515/9781501751417-007
{"title":"5. Just Say Yes","authors":"","doi":"10.1515/9781501751417-007","DOIUrl":"https://doi.org/10.1515/9781501751417-007","url":null,"abstract":"","PeriodicalId":408711,"journal":{"name":"We Walk","volume":"32 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130768089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-09-15DOI: 10.1515/9781501751417-006
{"title":"4. The Next Time","authors":"","doi":"10.1515/9781501751417-006","DOIUrl":"https://doi.org/10.1515/9781501751417-006","url":null,"abstract":"","PeriodicalId":408711,"journal":{"name":"We Walk","volume":"51 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126611380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-09-15DOI: 10.1515/9781501751417-010
{"title":"8. The Child Who Does Not Know How to Ask","authors":"","doi":"10.1515/9781501751417-010","DOIUrl":"https://doi.org/10.1515/9781501751417-010","url":null,"abstract":"","PeriodicalId":408711,"journal":{"name":"We Walk","volume":"69 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125661858","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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