癌症在社交媒体上的“小故事”

C. Stage
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引用次数: 1

摘要

在过去十年中,在社交媒体平台上分享的癌症叙事引起了越来越多的学术兴趣,但往往没有充分认识到这些平台的媒体特定叙事能力。本文将解决这个问题,首先提出一种“小故事”的方法来研究社交媒体上的疾病叙述,然后将这种方法应用于一个丹麦癌症患者的Instagram个人资料(@jannelivsnyder66)的案例研究中。本文认为,通过关注三个共同构成的互动层次之间的相互作用,可以分析地接近侧面的故事叙述实践:1)受可用文化话语和与追随者互动的影响,叙述者希望能够讲述的期望疾病叙事和立场的层次;2)一定程度的日常帖子分享,既可以支持也可以干扰期望的叙事;3)关注者回应的水平,其中期望的叙述和单一帖子之间的关系是通过点赞和评论的过程来监控的。鉴于此,社交媒体癌症叙事的追随者不应被理解为目睹个人讲述他/她“自己”故事的观众,而应被理解为社会互动和共同创造所需叙事、主体立场、叙事进展和可诉说性的关键贡献者。综上所述,这篇文章因此强调,尽管疾病与个体身体有很强的生物学联系,但社交媒体上的癌症故事是通过阅读、点赞、评论、监控和共同决定叙事实践等固有的社会过程出现的。
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Pre-Press Cancer narratives on social media as ‘small stories’
Cancer narratives shared on social media platforms have received increased academic interest over the last decade but often without sufficiently acknowledging the media specific narrative affordances of these platforms. The article will address this problem, by first presenting a ‘small stories’ approach to studying illness narrative on social media and then putting the approach to work in a case study of a Danish cancer patient’s Instagram profile (@jannelivsnyder66). The paper argues, that the storytelling practices on the profile can be analytically approached by focusing on the interplay between three co-constitutive levels of interaction: 1) a level of the desired illness narrative and position that the narrator, influenced by available cultural discourses and interaction with followers, hopes to be able to tell; 2) a level of sharing everyday posts, which can either support or disturb the desired narrative; 3) a level of follower responses, where relations between the desired narrative and singular posts are monitored through processes of liking and commenting. Followers of social media cancer narratives should in light of this not be understood as an audience witnessing an individual telling his/her “own” story, but rather as crucial contributors to the social interaction and co-creation of desired narratives, subject positions, narrative progress and tellability. In conclusion, the article thus stresses that cancer storytelling on social media, despite the strong biological connection of the disease to an individual body, emerges through inherently social processes of reading, liking, commenting, monitoring and co-deciding narrative practices.
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