儿童姑息治疗研究

H. Siden, K. Widger
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引用次数: 0

摘要

在本章中,我们概述了为什么儿科姑息治疗(PPC)的研究是必不可少的,描述了在受危及生命的疾病(LTCs)影响的儿童和家庭中进行研究的挑战,并提出了克服这些障碍的策略,以推进该领域,确保为我们的患者及其亲人提供最佳和科学合理的护理。本章概述的PPC研究面临的重大挑战令人生畏,但并非不可克服。鼓励所有医疗保健专业人员参与或支持系统的、严格的研究工作,以开发更多基于证据的PPC方法。
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Research in children’s palliative care
In this chapter, we outline why research in paediatric palliative care (PPC) is essential, describe the challenges to conducting research in children and families affected by life-threatening conditions (LTCs), and propose strategies for overcoming these obstacles in order to advance the field and ensure provision of optimal and scientifically sound care for our patients and their loved ones. The significant challenges to PPC research outlined in this chapter are daunting but not insurmountable. All healthcare professionals are encouraged to engage in or support systematic, rigorous research efforts to develop a more evidence-based approach to PPC.
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Perinatal palliative care Research in children’s palliative care Impact on the family Children’s views of death Overview of symptoms and their assessment in life-limiting illness
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