与特别的人一起的人生旅程:残疾儿童父母的起起落落

Katherine Arabis-Quijote, S. Mahinay, Laiza Mae R. Silvano, Kesha Nuet S. Anito, Ralf L. Flauta
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引用次数: 0

摘要

这项研究的核心是身体残疾儿童的父母的生活经历。这项研究是在哥打巴托省米德萨亚普的Barangay Poblacion 8进行的。它包括参与者故意选择身体残疾儿童的父母。她们的年龄从31岁到53岁不等,都是母亲。他们孩子的身体残疾要么是肌肉骨骼(矫形)残疾,要么是视力残疾。本研究采用现象学研究设计。研究结果显示,尽管孩子们的情况很明显,但参与者们还是怀着喜悦和感激的心情接受了孩子们是上帝赐予他们的祝福。他们和孩子们一起度过亲密的时光,有时感激他们学到的新事物,并忙着照顾好孩子们的整体健康。他们知道自己孩子的局限性,但并不认为他们与众不同。然而,他们寻求他人的接受、尊重和理解。参与者担心他们孩子的健康问题,对他们受到他人的虐待感到焦虑,并考虑他们将来可能被拒绝。参与者站在他们的孩子身边,从上帝那里汲取力量。他们看到生活的光明面,希望他们的孩子完成学业。作为母亲的参与者们都在为孩子着想,渴望得到帮助。可视化条
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LIFE JOURNEY WITH SOMEBODY SPECIAL: THE HIGHS AND LOWS OF PARENTS OF CHILDREN WITH DISABILITY
Central to this study is the lived experiences of parents of children with physical disability. This study was conducted at Barangay Poblacion 8, Midsayap, Cotabato. It included as participants purposively chosen parents of children with physical disability. Their ages ranged from 31 to 53 years old, and were all mothers. The physical disabilities of their children were either musculoskeletal (orthopaedic) or visual. This study made use of the phenomenological research design. Findings bared that despite the apparent conditions of their children, the participants joyfully and with gratitude accepted their children as blessings from God. They spent bonding moments with them, and at times appreciative of their learning of new things, and were busy taking good care of the total well-being of their children. They were aware of their children’s limitations, but they do not consider them as different. Nevertheless, they sought acceptance, respect, and understanding from others. The participants were concerned about the health issues of their children, anxious about the mistreatment they received from others, and pondered on their possible rejection in the future. The participants stood by their children and draw strength from God. They look at the bright side of life and hope that their children finish studying. The participants as mothers were longing for help for their children’s sake.  Article visualizations:
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