自闭症,公平,以及期刊是如何形成的

Megan Krasnodembski, Stephanie Côté, Jonathan K Y Lai
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引用次数: 0

摘要

在过去的一年里,一场大流行病席卷了世界各地,毫不奇怪,它揭示了生活各个方面的严重不平等。我们在持续不断的流行病媒体报道中看到了这一点,这些报道忽视了残疾人群体的经历,更具体地说,是自闭症群体的经历,至少一开始是这样。此外,我们不要忘记,在大流行的早期,在意大利等国家,残疾人被优先考虑使用救生设备(Andrews等人,2020年;Lund & Ayers, 2020),导致五分之一的加拿大残疾人(Morris et al., 2018)对他们在这里会发生什么感到恐惧。随着COVID-19抵达加拿大海岸,我们看到这种不平等模式在我们的社会中迅速复制。例如,患有发育障碍的加拿大人,如自闭症,生活在住宅环境中,没有得到与生活在不同类型住宅(如退休住宅)的人相同水平的支持(Abel & Lai, 2020)。同样,最初声称只有有“既存疾病”的人才有风险,这意味着那些有风险的人对社会的价值较低。没有什么比COVID-19大流行引起的这些不公正更能突出加拿大整个社会中残疾歧视的真正问题和程度,这就是加拿大自闭症公平杂志(CJAE)的种子。
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Autism, Equity, and How the Journal Came to Be
Over the past year a pandemic has swept across the world and, unsurprisingly, revealed gross inequalities across all aspects of life. We saw this in the constant pandemic media coverage that overlooked the experiences of the disability community and, more specifically, the autism community, at least at first. Furthermore, let us not forget in the early days of the pandemic that in countries such as Italy, people without disabilities were prioritized for life-saving machines (Andrews et al., 2020; Lund & Ayers, 2020), contributing to a culture of fear for the one in five Canadians with a disability (Morris et al., 2018) about what would happen to them here. As COVID-19 reached Canadian shores we saw this pattern of inequity quickly replicated within our society. For instance, Canadians with developmental disabilities, such as autism, living in residential settings did not receive the same level of support as those living in different kinds of residences such as retirement residences (Abel & Lai, 2020). Likewise, the initial claims that only people with ‘preexisting conditions’ were at risk implied that those at risk were somehow less valuable to society. Nothing has highlighted the very real problem and extent of ableism within Canadian society as a whole more than these injustices arising from the COVID-19 pandemic, and this is what planted the seed for the Canadian Journal of Autism Equity (CJAE). 
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