认知障碍者获取和使用信息技术:老年人及其照顾者的观点

Hajer Chalghoumi, A. Gauthier-Beaupré, Rosalie H. Wang, Charlene H. Chu, Claudine Auger, Winnie Sun
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摘要

信息技术(IT)在提高加拿大老年认知障碍患者的独立性和整体生活质量方面表现出巨大的希望。然而,这些用户经常难以访问和使用IT。因此,他们可能无法充分参与日常活动,并面临社会孤立的风险。护理人员在老年人干预措施中发挥着重要的支持作用,包括协助获取和使用信息技术。然而,关于乳糜泻患者这一主题的了解较少。这篇短文旨在探讨老年乳糜泻患者及其护理人员对其获取和使用信息技术的看法,以及护理人员的支持和态度在这一问题上所起的作用。我们采用定性描述方法,从15个半结构化访谈中获取数据,访谈对象为6名患有乳糜泻的老年人和9名护理人员。我们的研究结果揭示了三个相互关联的主题:(1)老年CD患者对IT的访问和使用有限,(2)老年CD患者在访问和使用的无障碍设计和支持方面的明确和未满足的需求,以及(3)护理人员在提供这种支持方面的核心作用。我们的结论是,所有相关的利益相关者在设计或提供针对老年乳糜泻患者的基于技术的解决方案时,必须考虑到护理人员在老年乳糜泻患者获取和使用技术方面的重要性。他们需要参与并考虑这两个群体的需求,同时不损害老年人的自主权。
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Access and use of information technology by persons with cognitive disabilities: Perspectives of older adults and their caregivers
Information technology (IT) embodies great promise in improving independence and overall quality of life of older Canadians with cognitive disabilities (CD). Nevertheless, these users often struggle to access and use IT. Thus, they may be prevented from fully participating in daily activities and are at risk of social isolation. Caregivers play an important support role in interventions for older adults, including assisting with access and use of IT. However, less is known about this topic with regards to persons with CD. This short paper aims to explore the perspectives of older adults with CD and their caregivers on their access and use of IT, and the role that caregivers' support and attitudes play in this matter. We used a qualitative descriptive approach that draws on data from 15 semi-structured interviews conducted with six older adults with CD and nine caregivers. Our findings revealed three interrelated themes: (1) limited IT access and use by older adults with CD, (2) older adults with CD's clear and unmet needs in accessible design and support for access and use, and (3) the central role of caregivers in providing this support. We conclude that all concerned stakeholders designing or delivering technology-based solutions targeting older adults with CD must account for the importance of caregivers' role in older adults with CD's access and use of technology. They need to engage and consider the needs of both groups, while not undermining older adults' autonomy.
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