母亲对癌症儿童生活质量的影响:一项定性研究

Lügen Ceren Güneş, Ender Durualp
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引用次数: 0

摘要

本研究采用质性现象学设计,以母亲对2 ~ 7岁住院癌症患儿的生活质量评价为研究对象。研究小组包括在安卡拉两所大学医院肿瘤科住院的10名儿童的母亲,这些儿童至少在6个月前被诊断患有癌症,并且没有重大的身体和运动发育障碍。采用“一般信息表”和“母亲访谈表”收集数据,采用内容分析法和描述性分析法进行分析。大多数母亲表示,在诊断和治疗过程中,她们的孩子出现了身体问题,并经历了负面的情绪变化。母亲们还表示,她们孩子的社交、情感、语言和大肌肉运动发展受到了不利影响,他们有身体和沟通问题,他们的游戏体验发生了变化,他们的生活质量也受到了影响。此外,他们表示,在诊断和治疗过程中,他们会见了儿童发展专家,这是一项令人满意的服务。根据这些考虑,得出了癌症儿童的身体、发育和沟通问题、情绪和生活质量变化以及儿童发展专业人员的经验。
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QUALITY OF LIFE OF CHILDREN WITH CANCER ACCORDING TO MOTHERS: A QUALITATIVE STUDY
This study, which aimed to examine the quality of life (QOL) of hospitalized children with cancer between the ages of two and seven according to the views of their mothers, has a qualitative phenomenology design. The study group included the mothers of 10-children who were hospitalized in the oncology department of two university hospitals in Ankara, diagnosed with cancer at least 6-months ago, and had no major physical and motor developmental disorders. The data were collected with "General Information Form" and "Mother Interview Form", and analyzed with content and descriptive analysis methods. Most of the mothers stated that their children had physical problems and experienced negative emotional changes during the diagnosis and treatment process. Mothers also stated that their children's social, emotional, language, and gross motor development were adversely affected, they had physical and communication problems, their playing experiences had changed, and their QOL had been affected. In addition, they stated that they met with a child development specialist during the diagnosis and treatment process which was a satisfying service. In line with these considerations, results were obtained regarding the physical, developmental, and communication problems, emotional and QOL changes experienced by children with cancer, and experiences with child development professionals.
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