慢性阻塞性肺疾病居家自我管理信息平台的开发、实施和评估:一项研究方案

A. Verma, A. Behera, KM Monirul Islam, A. Joshi
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引用次数: 0

摘要

背景:慢性阻塞性肺疾病给患者、其护理人员和卫生系统带来的负担正在逐渐增加,并与发病率、死亡率、残疾调整生命年和更高的费用相关。慢性阻塞性肺病的自我管理是其管理的重要策略。本研究旨在开发、实施及评估慢性阻塞性肺疾病居家自我管理资讯平台。方法:对COPD自我管理信息学工具或平台的相关证据进行系统评价。基于证据的COPD自我管理应用程序将通过前瞻性非随机研究在新德里确定的医院对35名COPD患者进行开发和实施。将进行一项混合方法研究,以评估该信息平台在德里选定医院的有效性。结果将根据COPD相关恶化的自我管理、COPD医疗机构入院次数和住院天数、对信息平台的依从性、需要住院的恶化次数、健康相关的生活质量来衡量。结论:基于家庭的慢阻肺自我管理信息平台的开发和评价将是印度慢阻肺患者的一种创新策略。
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Development, Implementation, And Evaluation of An Informatics Platform for Home Based Self- Management of Chronic Obstructive Pulmonary Disease: A Study Protocol
Background: The burden of chronic obstructive pulmonary disease to patients, their caretakers, and health system is gradually increasing and is associated with the morbidity, mortality, disability adjusted life years and higher costs. Self-management of COPD is a vital strategy for its management. This study aims to develop, implement, and evaluate an informatics platform for the home-based self-management of Chronic Obstructive Pulmonary Disease. Method: A systematic review will be conducted to synthesize and appraise the evidence on self-management informatics tool or platform for COPD. An evidence-based COPD self-management application will be developed and implemented to 35 COPD patients at identified hospitals of New Delhi using prospective non-randomized study. A mixed methods study will be conducted to evaluate the effectiveness of this informatics platform at selected hospitals of Delhi. Outcomes will be measured in terms of self-management for COPD related exacerbations, number of health care facility admissions for COPD and hospitalization days, adherence to the informatics platform, number of exacerbations requiring hospital visits, health related quality of life. Conclusion: The development and evaluation of home-based self-management of informatics platform for COPD would be an innovative strategy for the COPD patients in India.
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