呼吁扩大自闭症研究参与中声音的多样性

M. Salt
{"title":"呼吁扩大自闭症研究参与中声音的多样性","authors":"M. Salt","doi":"10.15173/cjae.v1i1.4991","DOIUrl":null,"url":null,"abstract":"Recently, there has been a push to increase research engagement within the autism community. Historically, research engagement has largely focused on childhood disability research and participatory autism research remains rare (den Houting et al., 2021). This gap in the literature can often result in the substitution of parents’ voices for those of their Autistic children within the framework of family-centred services. This article argues that research engagement should be conducted in a way that can represent the wider autism community and cautions against allowing voices of one element of the autism community to speak for the whole. ","PeriodicalId":123262,"journal":{"name":"Canadian Journal of Autism Equity","volume":"10 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2021-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A Call for Expanding the Diversity of Voices in Autism Research Engagement\",\"authors\":\"M. Salt\",\"doi\":\"10.15173/cjae.v1i1.4991\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Recently, there has been a push to increase research engagement within the autism community. Historically, research engagement has largely focused on childhood disability research and participatory autism research remains rare (den Houting et al., 2021). This gap in the literature can often result in the substitution of parents’ voices for those of their Autistic children within the framework of family-centred services. This article argues that research engagement should be conducted in a way that can represent the wider autism community and cautions against allowing voices of one element of the autism community to speak for the whole. \",\"PeriodicalId\":123262,\"journal\":{\"name\":\"Canadian Journal of Autism Equity\",\"volume\":\"10 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-04-06\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Canadian Journal of Autism Equity\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.15173/cjae.v1i1.4991\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian Journal of Autism Equity","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.15173/cjae.v1i1.4991","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

最近,在自闭症群体中有一种增加研究参与的趋势。从历史上看,研究参与主要集中在儿童残疾研究上,参与式自闭症研究仍然很少(den Houting et al., 2021)。这种文献上的差距往往会导致在以家庭为中心的服务框架内,父母的声音取代了自闭症儿童的声音。这篇文章认为,研究参与应该以一种能够代表更广泛的自闭症群体的方式进行,并警告不要让自闭症群体中的一个人的声音代表整个群体的声音。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
A Call for Expanding the Diversity of Voices in Autism Research Engagement
Recently, there has been a push to increase research engagement within the autism community. Historically, research engagement has largely focused on childhood disability research and participatory autism research remains rare (den Houting et al., 2021). This gap in the literature can often result in the substitution of parents’ voices for those of their Autistic children within the framework of family-centred services. This article argues that research engagement should be conducted in a way that can represent the wider autism community and cautions against allowing voices of one element of the autism community to speak for the whole. 
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
期刊最新文献
Fostering Inclusion Around Housing Transitions Autistic Children and Group Homes Autistic Perspective on Workplace Disclosure and Accommodation British Columbia’s Autism Funding Policies cohabitation en mixité sociale
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1