老年人和残疾人的个人自主性:辅助技术对其的影响

Ricardo Morte, M. Toboso, M. Aparicio, T. Ausín, Aníbal Monasterio, Daniel López
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摘要

近几十年来,技术变革引人注目,包括旨在促进老年人和残疾人自主的辅助技术领域。由于通过相互承认的人权(公民和政治、经济、社会和文化、第三代)提供道德和司法保护,个人自治成为可能。目前的技术变革可能改变个人自主权的行使,危及其规范性保护,因为其中一些权利目前需要能够进行技术调解。如今,《联合国残疾人权利公约》(CRPD)作为界定和保护残疾人(主要是老年人)自主权的国际规范性框架发挥着主导作用,其中包括对技术发展的重要参考。新的辅助技术,可用于记录生理变量或监测生活习惯模式,被建议作为促进个人自主的设备。运行状况监控可能会影响隐私、身份、完整性和个人数据保护。因此,有必要将伦理反思从CRPD扩大到隐私和数据保护的相关法规(General data protection Regulation [GDPR]和privacy Regulation Draft ePrivacy)以及GDPR第35条规定的数据保护影响评估(data protection Impact Assessment, DPIA),特别是与辅助技术领域相关。在这篇文章中,我们展示了技术变革如何影响个人自主权的某些方面,以及它的规范性保护、隐私和护理。
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12 Personal autonomy in elderly and disabled: How assistive technologies impact on it
Technological change has been notable in recent decades, including the field of assistive technologies aimed at promoting the autonomy of the elderly and disabled people. Personal autonomy is possible thanks to ethical-juridical protection through reciprocally recognized human rights (civil and political, economic, social and cultural, third generation). The current technological change could produce an alteration in the exercise of personal autonomy, putting at risk its normative protection, since some of these rights currently require technological mediations to be able to be carried out. Nowadays, the UN Convention on the Rights of Persons with Disabilities (CRPD) governs as the international normative framework that defines and protects the autonomy of people with disabilities, mostly elderly, and includes important references to technological developments. New assistive technologies, that can be used to record physiological variables or to monitor habitual patterns of life, are suggested as devices that promote personal autonomy. Health monitoring could impact privacy, identity, integrity, and the protection of personal data. Therefore, it is necessary to broaden the ethical reflection from the CRPD to the relevant regulations on privacy and data protection (General Data Protection Regulation [GDPR] and Draft Privacy Regulation ePrivacy) and the Data Protection Impact Assessment (DPIA) provided in Art. 35 GDPR, which is especially relevant for the realm of assistive technologies. In this contribution we show how technological change affects some aspects of personal autonomy, its normative protection, privacy, and care.
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