11 数字健康中自主权的重构与(社会)辅助技术的伦理

Bettina Schmietow
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引用次数: 2

摘要

在这篇文章中,社会辅助技术的伦理影响是在一个彻底“数据化”的社会中,在数字化医疗和医学的背景下进行分析的。智能家居传感器和护理机器人等社会辅助技术引发了伦理问题,这些问题与这类技术中的其他技术(例如与健康有关的应用程序、远程监控)一样持续存在,但它们在老年人等特别脆弱人群中的应用似乎也暴露了既定医疗伦理和技术评估工具的局限性。虽然已经开发了一些特定的分析和伦理工具,但基本伦理标准和参考概念本身的含义和范围正在进一步变化。这将通过关注(个人)自主的重新概念化来说明,例如从患者自主到用户或消费者自主的转变,在参与性,民主护理和医学中授权自主的愿景,以及设备本身的预期“自治”的影响。沿着这些方向对辅助技术进行更广泛的讨论,可能有助于适应老年人和/或弱势群体往往不稳定的自我决定的内部能力,并避免忽视重要的背景和外部因素,以支持和促进自主性,并将其作为数字健康的道德基石。
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11 Reconfigurations of autonomy in digital health and the ethics of (socially) assistive technologies
In this contribution the ethical impact of socially assistive technologies is analyzed against the background of digitalized healthcare and medicine in a thoroughly “data-fied” society in general. Socially assistive technologies such as smart home sensors and carebots raise ethical issues which are continuous with other technologies in this cluster (e. g. health-related apps, telemonitoring) but their application in the context of particularly vulnerable populations such as elderly persons also appears to ex-pose the limitations of established medical ethics and technology assessment tools starkly. While some specified analytic and ethical tools have already been developed, the meaning and scope of the underlying ethical criteria and reference concepts themselves is changing further. This will be illustrated by focusing in on reconcep-tualizations of (personal) autonomy such as the shift from patient autonomy to user or consumer autonomy, the vision of empowered autonomy in participatory, democratic care and medicine, and the effects of a prospective “autonomy” of the devices themselves. A broader discussion of assistive technologies along these lines may help accommodate the often precarious internal capabilities for self-determination in the elderly and/or vulnerable, and avoid neglect of important contextual and external factors to support and promote autonomy as an ethical cornerstone also in digital health.
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