结核病患者的病耻感患病率及其相关因素——印度普杜切里一项基于社区的横断面研究

Lavanya Baskaran, K. Vasudevan, Anandaraj
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摘要

背景:结核病(TB)是一种具有医学和社会双重维度的疾病。结核病患者所经历的耻辱和相关歧视是采取消除结核病干预措施的障碍。更好地了解耻辱感将提高旨在减轻结核病耻辱感影响的干预措施的有效性。目的是测量自我、预期、经历的病耻感的患病率及其相关因素,并探讨结核病相关病耻感对结核病患者的影响。方法:在印度南部的普杜切里地区进行了一项横断面研究,对420名在NTEP下登记的成人药物敏感非艾滋病毒结核病患者进行了研究。采用标准化问卷,采用面对面访谈的方式收集数据。结果:研究参与者的平均(±SD)年龄为44.5(±15.03)岁。以男性(267人,63.6%)和已婚(330人,78.6%)居多。结核病患者的病耻感患病率为69.3%。47.1%的人有耻辱感,33.6%的人有自我耻辱感,26.0%的人经历过耻辱感。在衡量耻辱感的影响方面,52.6%的人报告了参与限制。发现文盲和较低的社会经济地位与结核病污名显著相关。结论:结核病患者的耻辱感较高。有必要利用适合当地文化和可获得的资源,针对污名和歧视采取以患者为中心的干预措施。
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Prevalence of Stigma Among TB Patients and Its Associated Factors - A Community Based Cross-Sectional Study in Puducherry, India
Background: Tuberculosis (TB) is a disease that has both medical as well as social dimensions. Stigma and associated discrimination experienced by persons affected by TB is a barrier to the interventions towards TB elimination. A better understanding of stigma will improve the effectiveness of the interventions aimed to alleviate the effects of TB stigma. The objectives were to measure the prevalence of self, anticipated, experienced stigma and its associated factors and to explore the impact of tuberculosis related stigma among TB patients. Methodology: A cross-sectional study was conducted in Puducherry district, Southern India among 420 adult drug sensitive non-HIV TB patients registered under NTEP. Data was collected by face-to-face interview using standardised questionnaire. Results: The mean(±SD) age of the study participants was 44.5 (±15.03) years. Majority were males (267, 63.6%) and were married (330, 78.6%). The prevalence of stigma among TB patients was found to be 69.3%. Perceived stigma was noted in 47.1%, 33.6% had self- stigma and 26.0% had experienced stigma. On measuring the impact of stigma, 52.6% reported participation restriction. Illiteracy and lower-socio economic status were found to be significantly associated with TB stigma. Conclusions: Stigma among TB patients was high. Tailored patient-centric interventions to address stigma and discrimination using culturally appropriate and locally available resources are necessary.
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